wanted

  1. D

    Difficulty supporting a partner

    I’ve been with my partner for almost five years but we don’t live together and don’t plan too. Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that. My partner has always been unable to be supportive...
  2. Nikki J

    Unwanted messages

    Please remember that you can use the report button if you receive unwanted visitor messages or private messages. It is helpful if you do so as the moderators can and will intervene if there is a pattern. Be aware that sometimes the person is messaging multiple members so it is helping others...
  3. N

    Family member positively reflecting on life and loss

    I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
  4. M

    A 10yr update and still undiagnosed

    Hello Everyone, I got some personal messages about my status and thought of sharing with you. I am still freaking out over ALS by the way, which is not healthy at all... I'm a 39 yr old man who has been experiencing ongoing neurological/muscle issues for the last 10 years. I will summarize...
  5. KimT

    Dental Issues

    After a very uncomfortable and painful dental appointment to replace a 40-year old crown today, I decided I need to write another ALS information sheet for dentists. The ALS Awareness Paper would probably not get read and it doesn't really address dentistry and ALS. When I went for a cleaning...
  6. H

    Need some help on weight gain and stomach collapsing when I lie down

    Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...
  7. S

    My latest Emg and apologies in advance.

    Hi. I realise I have posted a lot and asked a lot of questions so apologies. You have been so kind to answer. It is sincerely appreciated and I haven't been back for six months because I wanted to resist bothering you. I am however still in diagnostic limbo after 2 and a half years. I stated...
  8. I

    Should I be worried

    Hello everybody! I have been thinking about this for two weeks and I really cant let it go. My mind is ruined because of all thinking. I sleep extremely bad I can not talk to anyone and I always have a lump in my throat because of all the concerns. I never thought I would be here and write in...
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