wanted

Hello I posted back in January with speech difficulty and mild twitching and discomfort in my leg! My symptoms are still there with added discomfort now in my right wrist and palm! My doctor was sure it was Lyme after Elisa test came back positive but the reference lab said there wasn't...

Hello, I am a CALS--my mother was diagnosed with ALS about 6 weeks ago. She has limb-onset ALS and no longer has the use of her arms. Her legs are getting weaker, so they will go next. Her breathing /swallowing is great. Her respiratory therapist said her respiratory function was "off the...

I just wanted to post what we went through yesterday in case anyone has this issue so you know what we did and hope that it might help someone else. This is not something I ever thought would be a problem with ALS. Last night my sister was in distress and we couldn't figure out was wrong, now...

Hey guys, I’m 25 years old, brazilian and live in Rio de Janeiro so, sorry if there are some english problems. About a year and a half ago I had a really weird viral infection that evolved to pericarditis and a bunch of other stuff, but I made a full recovery. A few months after, however, I...

Hello everyone, I would like to thank you all for taking the time of reading and replying this. I am a med student from Colombia and my English is a little rusty, but I will do my best to communicate my messy thoughs. Last November I was on my campus when I started having little jerk moves...

Hi - I posted here last in April. https://www.alsforums.com/forum/do-i-have-als-als/38242-my-story.html I just wanted to pop in and at least update. I had a baby 5 months ago and it would be an understatement to say I still twitch. My god, do I twitch. But it has been 18 months of it - and...

It's been 5 and a half weeks since Mom passed and it has been such a whirlwind, but I've been thinking about the folks here with such gratitude. (I've typed five summaries of these last weeks and keep deleting them. Suffice it to say that they've been busy and good and sad and maybe I'm...

Hello again. Apologies for the new thread, as my last threads have closed (titled "Strange Symptoms", and "Sanity Check"). I just wanted to give a final update and "fair well", as my EMG and NCV today were clean. I would like to extend a thank-you to all of the PALS and CALS on this forum for...

My PALS is currently three months in to the Acthar Gel clinical trial. I know there was some people asking about it earlier, I wanted to post in case anyone had questions. I don't feel like it is reversing anything, but it has really helped her stamina and appetite.

I am new here and am FINALLY seeing a neurologist, but wanted to get a feel for the experience of others. After [failed] surgery to repair my left ankle joint, I knew they had damaged the nerves in my foot and ankle, so any problems in that leg was always seen as a result of the surgical...