wanted

  1. Z

    Waiting for a diagnosis

    Hello everyone I'm french so i am deeply sorry if my english is sometimes approximative. I have been experiencing tiring symptoms from more than 2 years now and i hope you could tell me what you think about it. I am a female of 27 years old now but my problems began when I was 25. I was a...
  2. wmilo

    New to the Forum

    Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group. My experience started with foot drop in the...
  3. Bestfriends14

    A question for PALS

    Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
  4. S

    Possible tongue atrophy

    I am a 32 year old male who's been worried I have ALS. I am here because my fears and research keep contradicting themselves. I wanted to ask real people who know. I have been experiencing very frequent muscle twitches (legs and arms) but I've maintained muscle mass and in fact gained so I...
  5. A

    Drained

    Just wanted to post some good news. Foot is healing and I should be out of boot in two weeks! Can't wait till back in sneakers. It has been very difficult, but used a knee scooter with basket to get around house. Taking husband to dentist and arranging coverage so I could go to ortho had...
  6. P

    Sincere and utmost apologies. Those worrying please read my post

    Dear Moderators and senior members I express my SINCERE and UTMOST apologies to you all and I ask for forgiveness for my recent irrational behavior and what appeared to be disrespectful actions. I ask that if you want to ban me again its ok but please could you leave this post up for those who...
  7. I

    Responses from the ALS team at UCSF

    Ended up in the ER here in San Francisco for about four hours yesterday for severe dehydration. Ran an IV to rehydrate me, did some basic RT tests. They wanted to keep me and out in an emergency PEG today. After consulting with everyone, decided to have me keep the scheduled appointment today...
  8. T

    No Hospice

    So we are being told that since my sister is on a bipap machine that medicare will not pay for hospice. Some say that they will take her but eventually she will have to come off of it since its "prolonging her life". My question is for the CALS that have gotten hospice. What all do they do for...
  9. C

    Dysphagia/Respitory onset

    Hey guys, first of all, I'm very sorry for all your struggles with ALS and I do not wish anyone to have this terrible disease. About me, I am very scared of ALS for like 3 weeks now. It all started about 9 months ago. I've started having very strong coughing issues while eating/ even drinking...
  10. L

    Jevity via Feeding Tube

    My sister is having an issue with vomiting. I believe it begins with saliva pooling which caused coughing, then gagging which sometimes leads to vomiting (about 3 - 4 times a week). She is taking 2 cans of Jevity via feeding tube around 1 pm and then 1 or 2 cans in the evening around 6 pm. This...
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