wanted

Hello - Thank you ahead of time for your guidance and opinions. I feel like I'm losing my mind. Last September, I started exhibiting classic MS symptoms (numbness, tingling, burning sensations, and very weak legs and arms). My symptoms have never gone away, just change every few weeks or so...

I would appreciate advice/counsel/wisdom regarding having to go two to four times per night. I'm still able to get myself to the bathroom but I'm concerned about managing it when it's time for a chair. I also have BPH (enlarged prostate) and that doesn't help. My urologist seems to be reluctant...

(Sorry for the long post, for all who don't want to read through my story, you can simply skip to paragraph "8" to review the symptoms and advise. 1) Hi, this is obviously my first post here. I am 27 years old male. I have a healthy semi muscular body, I was a good athlete in the past and took...

This is my first post here, I am a 43 year old mom of 7 so I'm sure like most I can't help but think this can't be happening to me....My symptoms began in October of 2017 with constant headaches and a dull ache in my back shoulder area I seen my GP dr. Who sent me to get a ct scan of my...

I’m sure many of you are familiar with the “Ode to Joy” from Beethoven’s Ninth Symphony. The full symphony is nearly an hour long and is arguably the greatest symphonic work ever written. I have been playing principal bassoon in a semi-professional orchestra for a number of years. Our...

My husband was formally diagnosed with ALS in February of 2018, although he has had foot drop for over two years. We have been told his progression is slow and did get a second opinion at a highly regarded ALS center. I think we were both afraid to ask many questions about his progression but...

I wanted to share some exciting news... My dad had been using a Head Mouse until he could no longer move his head, about two months ago. There are plenty of expensive options for "eye tracking" - but I found a $150 device on Amazon called Tobii Eye Tracker 4C. It's designed for gaming, but...

Hello, My mom is in the end stages of ALS. We had in-home hospice for a week when we decided together to go to the in-patient facility so she could be more comfortable as the meds at home were not doing enough. We’ve been here almost a week now and she had been more comfortable but now I am...

I was dealing with some pretty bad health anxiety this past week, of course after watching the VICE news piece on ALS and an HBO movie called “Jenifer.” I’m very sure I don’t have it now because I’ve only been experiencing a feeling of weakness, primarily in the hands, that sometimes is felt in...

Dear Steph, I just wanted to let you know the fourth PALS in the Volusia/Flagler chapter is now using Steve's chair. The chair has been a blessing to PALS over this way. I used it when I sprained my ankle, someone had it before I got it back, then it went on to serve more PALS. Your generous...