I was originally diagnosed with progressive bulbar palsy in January of 2018. At that time we were told that there was an excellent possibility of having several years before things really became troublesome. In April 2018 I had a PEG put in and speaking was no longer a possibility. My legs...
Our clinic doctor prescribed Curcumin (we use Theracurmin) several weeks ago.
90 mg twice per day.
He increased the doses to three times a day on our last clinic visit and indicated that my wife could take 180 mg twice per day instead of 90 mg three times a day.
I noticed that my wife...
My sister is having an issue with vomiting. I believe it begins with saliva pooling which caused coughing, then gagging which sometimes leads to vomiting (about 3 - 4 times a week). She is taking 2 cans of Jevity via feeding tube around 1 pm and then 1 or 2 cans in the evening around 6 pm. This...
Hi All, can't believe I have arrived at this point. First let me say my heart goes out to all that have been diagnosed with this awful disease. I have the a ton of respect for all who work hard to support people like me with whatever they may be going through. I will try to keep this short...
I don’t understand why prescription medicine is allowed to be advertised on TV or why anyone would think of trying one of the medicines after listening to the laundry list of warnings of possible side effects. But this is definitely an exception!
Do you have feelings of inadequacy?
Since last Thursday, a week ago, my pals has started a new process. Sleeping way more, can only tolerate 3 cans of formula via g-tube only. Been using morphine in the day now as well and not just at night. He has stayed in bed all day 2 times this week, and other days only got in his PWC for a...
My mom was diagnoses in Feb of this year. We have gone through many changes and she has been on hospice for two months. She has a peg tube and we had some issues early on but the hospice finally got her on the right stool softeners and laxative. For the last three days she has been...
It has been over 2 months since I last visited the forum and I see that we have lost so many more of our dear warriors. I was having some difficulty with the losses, and then my own body gave out on me. I have been Tim's sole care giver since he was diagnosed in 2012, but have been blessed...
Greetings to all and before I go into our situation I want to express my good fortune and gratitude for finding such a valuable resource as this online forum.
My 82 year old uncle fell ill and was hospitalized due to a hypofunctioning esophagus. 15 years ago he had ruptured his esophagus due...
I'm 16 and a male
Earlier this year I was experiencing: Dizziness, Fatigue and Vomiting So I went to a Neurologist and made an order for two kinds of MRIs non-contrast and with contrast. Now, in the middle of the non-contrast MRI i got scared and couldn't finish the MRI but they asked an doctor...