voice

  1. T

    Just Read

    Hi. First time I was in here, it was 3 years ago. I was depressed, trying to find what is WRONG with me, what is WRONG with my body. People here like Nikki J, Vincent and Atsugi... They were trying to help me, saying it's nothing wrong with me, but I was just like YOU, I didn't accept what...
  2. G

    Wanted to share my blog.

    I don't know if this is acceptable or not here. I just wanted to share with you all that I recently created a blog. It is just a chronicle of my story and my thoughts about life with ALS. I hope to provide some voice for pALS and about pALS. I would be honored for any one of you to stop by...
  3. wishmobbing

    Wishmobbing's boyfriend slipped away

    Dear forum friends, after a mostly good year, a couple of harder months and a final night with lots of music and holding hands my PALS peacefully fell asleep and never woke up again. In the 13 month after diagnosis he lost a lot, his work (never missed), his ability to move (accepted with...
  4. M

    MND diagnosed in March 2018

    Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...
  5. V

    Scary symptoms, waiting for neuro appointments

    Hi everyone, I am a 30 yr old who has been having some worrying symptoms for the last 5-6 months. I have been to my GP who referred me to a neurologist, and I have an appointment in a couple of months. I post hoping that someone has some input on my symptoms, and to see if they sound familiar to...
  6. M

    Several Issues, Need advice

    Hi. I am 37 to make who has developed a lot of twitching and muscle pain in the past few months. I herniated a disc in my lower back last December, so I have had lots of sciatic pain/leg and foot numbness and tingling from that. I developed severe anxiety and started having panic attacks this...
  7. S

    New symptoms have appeared. Is it bulbar?

    <Mod note: previous thread> Hello again! My symptoms with right hand and right leg weakness are kind of the same, nothing worse, nothing better. What intrigues me is that for three weeks now I have had a lump in my throat feeling and mild dysphagia (feeling food is stuck in my throat and I...
  8. Clearwater AL

    New cars...

    New cars… (For those bored... something to read.) :-) Fifteen, twenty and 30 years ago when I bought a newer or a brand new car after I signed the paper work and got the keys… I’d get in the car I just bought, happy with my purchase. I’d reach under the front of the seat and adjust the seat...
  9. KarenNWendyn

    Recordings of my music

    I’ve pretty much lost my ability to play bassoon due to loss of fine motor strength in my hands. I decided to make a series of recordings for my partner while I still could. I guess it’s a bit like voice banking in that I probably should have done this sooner. The recording here is a...
  10. B

    Enfolding Prayer

    *Ephesians 6:18 And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the LORD's people. *Psalm 55:17 ESV Evening and morning and at noon I utter my complaint and moan, and he hears my voice. *2 Timothy...
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