voice

  1. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
  2. B

    Concerned about ALS

    (Sorry i first posted it by error in the general feed) Hello everyone, first of all thank you for everyone contributing to this forum because I find it quite helpful to read about individual experiences. I am writing here as I have been experiencing different health problems for a while...
  3. R

    Tobii Dynavox I-15+, Eye Gazer / Computer / Speech generator for sale/LOWERED PRICE

    ABOUT: I am selling a speech generating device with eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, I can send it worldwide. PRICE: 3.500 $ CONTACT: You...
  4. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  5. BlsdMama

    Recording tech?

    I'm ready to record with Model Talker, but I'd also like to make some longer recordings of audiobooks of my favorite books I've read the older children - both for my younger ones who are still little and for my grandchildren. I have a PC, iPad, noise reducing headphones... But I want to make...
  6. E

    Vitamin deficiency? Thyroid? or possible bulbar als?

    Hello , first of all i wish everyone immediate health. My name is Özgür and im from Turkey. I came here to get some answers and to be honest im a little bit concerned. İ dont want to annoy anyone but this country doesn't have so much knowledge about this disease (apparently me neither but still...
  7. R

    I'm a bit frightened

    So I'm not going to pretend I know alot about Als. I know it's something I'm scared of, something I dont want to have. However I have been experiencing nerve problems. Notably pain in both my arms, wrists and hands. Now I know it could be a lot of things, arthritis and carpul tunnel. I...
  8. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  9. B

    Concerned

    Ignore if you must. I know you guys receive a lot of these and you guys obviously cannot diagnose me, I'm just concerned. For the past few weeks I've been noticing something with my voice. It's getting harder to yell and sing. I've also been having this constant feeling of something caught in my...
  10. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
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