voice

  1. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  2. BlsdMama

    Recording tech?

    I'm ready to record with Model Talker, but I'd also like to make some longer recordings of audiobooks of my favorite books I've read the older children - both for my younger ones who are still little and for my grandchildren. I have a PC, iPad, noise reducing headphones... But I want to make...
  3. E

    Vitamin deficiency? Thyroid? or possible bulbar als?

    Hello , first of all i wish everyone immediate health. My name is Özgür and im from Turkey. I came here to get some answers and to be honest im a little bit concerned. İ dont want to annoy anyone but this country doesn't have so much knowledge about this disease (apparently me neither but still...
  4. R

    I'm a bit frightened

    So I'm not going to pretend I know alot about Als. I know it's something I'm scared of, something I dont want to have. However I have been experiencing nerve problems. Notably pain in both my arms, wrists and hands. Now I know it could be a lot of things, arthritis and carpul tunnel. I...
  5. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  6. B

    Concerned

    Ignore if you must. I know you guys receive a lot of these and you guys obviously cannot diagnose me, I'm just concerned. For the past few weeks I've been noticing something with my voice. It's getting harder to yell and sing. I've also been having this constant feeling of something caught in my...
  7. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
  8. W

    Laryngospasm and atrophy

    First of all, I'd like to apologize for the post. I've tried to avoid it until now, but my worries are totally draining the focus of my life and I feel you can help me. I'm a man, I'm 28 years old and I live in Spain. Just over two months ago I started having a cough crisis that did not end at...
  9. V

    Worried/Scared

    The first thing I want to say is thank you for having a place like this, where people can go to voice their concerns. For that past 3 months, I've had disequilibrium. If you don't know me, you can't tell, but I feel off balance when I walk. It becomes especially pronounced if I stand with my...
  10. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
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