voice

  1. R

    I'm a bit frightened

    So I'm not going to pretend I know alot about Als. I know it's something I'm scared of, something I dont want to have. However I have been experiencing nerve problems. Notably pain in both my arms, wrists and hands. Now I know it could be a lot of things, arthritis and carpul tunnel. I...
  2. C

    Abnormal EMG/Twitching- Any hope?

    Hi all, sorry for the long post but need to get it out... I have been lurking for a few weeks now. I have had twitching- mainly in the calves/thighs/butt- for 2-3 weeks now. Had been mainly in my quad next to my knee but rarely it twitches there now. Legs are pretty much non stop at rest...
  3. B

    Concerned

    Ignore if you must. I know you guys receive a lot of these and you guys obviously cannot diagnose me, I'm just concerned. For the past few weeks I've been noticing something with my voice. It's getting harder to yell and sing. I've also been having this constant feeling of something caught in my...
  4. A

    So worried

    6 months ago I had weakness on my right side, numb tongue, facial numbness, followed by fasiculations in my tongue and my entire body. Fast forward and I have right foot drop burning tongue, difficulty swallowing I just left the hospital after an endoscopy, swallow study and a manometry, clean...
  5. W

    Laryngospasm and atrophy

    First of all, I'd like to apologize for the post. I've tried to avoid it until now, but my worries are totally draining the focus of my life and I feel you can help me. I'm a man, I'm 28 years old and I live in Spain. Just over two months ago I started having a cough crisis that did not end at...
  6. V

    Worried/Scared

    The first thing I want to say is thank you for having a place like this, where people can go to voice their concerns. For that past 3 months, I've had disequilibrium. If you don't know me, you can't tell, but I feel off balance when I walk. It becomes especially pronounced if I stand with my...
  7. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
  8. L

    Should I worry?

    Hi, I have read the thread with the symptoms and I wouldn’t have posted here, if it weren’t for my knees that are kinda bothering me – some vibrations, not exactly twitching which probably wouldn’t scare me because I would say the cold is to blame ( I sleep in just a shirt and it is kinda cold...
  9. D

    Voice Banking Anything New?

    I am considering voice banking. All of the threads seem to be closed. What are the latest developments? What have you tried? Is it worth it—your opinion please?
  10. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
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