voice

Hi everyone - I am reluctantly posting again after doing my best to stay away from this website. I stayed away for the most part since my last thread but have glanced every now and then. I am back to say that I know not all is well. I am twitching everywhere and my symptoms regarding bulbar...

Haven't posted here for a while. Had repeat EMG nerve conduction as I've felt my symptoms are progressing. Neuro said his exam was normal ( although I'm not sure mute plantur response is) Nerve conduction shows mild reduction of velocity with normal amplitude ( left ulnar nerve,) Mild slowing...

I read in another thread that there are a few on here that had respiratory issues early on and they all seemed to follow the same path, but I haven't found a post that talks about how the disease progressed. My Mom had a FVC of 34% when she was diagnosed last month. Her symptoms started with...

TOBII PCEye Go + Communicator 5 Software purchased 1/16 for $2539.00. This attaches to a tablet or laptop for voice communication using mouse, switches or Eye Control. My wife loved it for communicating through SKYPE with family. Although it has capability for far more, we were not that...

Hello, I'm sorry to be posting here and taking up some of your valuable time reading my message. I'm concerned and very afraid that what I'm experiencing could be the first symptoms of ALS. My health scare saga began about six months ago, and I'll try to summarize it as briefly as possible...

I am in a pwc all day and rest my arms on the armrests. My toilet at home has the raised seat and railings on the side. I am fine with this. My core and arms are getting weaker. The last time I used a public bathroom (at the clinic ) was awful. I was so floppy, couldn't reach the grab...

My PALS avoided the laborious task of voice banking for a long time. After her voice started to go away, she recorded a few hundred common phrases, which was helpful, but in hindsight, these recordings were rather wooden and usually revealed no more personality than the electronic voice of her...

Hello everyone, first of all thank you to anyone willing to read and respond. I'll preface by stating that I am female and only 31 years old, which I know makes ALS a very rare possibility. Over the past year I have gradually developed painless, unexplained muscle weakness in my left hand...

We had our first appointment with the speech therapist and we were hopeful that we could voice bank for Jon. The program is through the University of Buffalo and they use Model Talker. Unfortunately, it looks like Jon's voice has deteriorated to the point that we will not be able to use it...

In May 2016, after a series of falls and visits to many doctors, my mother was diagnosed with ALS. I've been lurking here, scared to come out and say anything, touched by so many stories here and by the support you all offer one another. I have benefitted indirectly when I was feeling quite...