veteran

  1. S

    Any advice welcome, very new to this

    Hi, I Am Sherri, my husband has recently been diagnosed with ALS, I am 56 and he is 57 problems started a couple years ago with muscle loss in his hand and a little balance problems approximately June 2016 and now he cannot lift his left arm his left hand is crippled Up and bad balance, his...
  2. C

    Respiratory onset?

    Hello everyone, I know from my title I picked the rarest of the rare to worry over, and I’m sorry ahead of time if come off as someone with just health anxiety. I don’t mean to waste no ones time here especially those who are suffering from this terrible disease. My prayers go out to all of...
  3. L

    I was misdiagnosed - I don't have ALS

    Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...
  4. MJALSWarrior

    Newly diagnosed

    Diagnosed at Ralph H Johnson VA Medical Center on December 5th. 58 yo Navy veteran. Not a surprise as I have had some symptoms for the last year or so. Ready for a fight. I beat cancer, this might be a little harder.
  5. R

    Worried 21 years

    Hello. For two months I have been experiencing some worrisome symptoms. It all started with some contractions in my right arm and right leg and a feeling of weakness in these limbs. At the same time I also had a pain in my thoracic back area, especially after I stand or I do something phisicall...
  6. B

    New member intro, glad to be here...

    Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...
  7. J

    Some Advice

    I am in the maintenance field and have been having issues with dropping tools and parts along with having issues climbing and balance along with weekness on my right side which is making my work extremely hard. After having twitches in my right hand my doctor sent me to a neurologist and I after...
  8. E

    ALS presenting with paresthesia?

    Hello all, and a sincere thank you for being here and sharing your thoughts-- I am curious to hear about your experience with paresthesias (burning pain, tingling, or numbness) in ALS/MND. Have any of you had paresthesias as the first symptom of ALS or other MND? How would you describe them...
  9. S

    Autonome

    Hello, I'm curious if anyone has experience with Autonome ECU from Accessibility Services? Dad is a veteran, and is in need of an ECU, and have just started down the path of autonome from Accessibility Services. Any tips or insight? Thanks
  10. Jhettinger

    Veteran Van Questions

    How much am I allowed for a conversion? I have seen conflicting information on van purchase offset and more money for conversions. Looking at a sprinter with a under vehicle ramp. Thoughts? Live in Atlanta. Any names of people who work with VA that help out?
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