vent

  1. L

    Tongue Fasciculation question

    Hi, so I'm 22 and have been experiencing widespread twitching (including tongue and facial twitching) for about 6 or 7 months now. Started with some twitches in my body then to my tongue then came back with a vengeance in my thighs face feet and thumbs. Experiencing a lot of other symptoms but...
  2. M

    Damn Damn Damn..

    t's been awhile since I posted but tonight I needed to share my thoughts. My best friend was diagnosed about 2 yrs ago with ALS, muscle onset. She is now totally non weight bearing and her left arm is pretty much useless. She still looks great, even has gained weight. She eats,drinks,talks all...
  3. S

    Mucus plugs

    My husband is on a vent and I am dealing with a lot of mucus plugs. I give him plenty of water and mucinex twice a day. I also shoot saline bullets in his trach. Does anyone have any suggestions?
  4. T

    This has taken hold of me....

    Hello Friends. This is only like my fourth day being on the forum but I would like to tell those of you who have read and responded to my post thank you so much for your response. I also kind of wanted to take this time to tell those of you who are worried about ALS that I completely understand...
  5. K

    Having a bad day

    My mom's ALS is progressing very fast. I'll spare all the details, but one arm gone, other arm 99% gone. She can barely shuffle across the floor and only with my dad or I providing total support. Can't feed or toilet herself. Her speech is going quickly as well. Today it seems as if I am...
  6. T

    Such a short time, such a long road.

    It's hard to believe that since we first heard the words "possible ALS" on April 22 that my dad would be where he is today. What was some twitches in his biceps is now full blown. He barely can use his left arm and his right is going quickly, he walks well but slower paced and with a hint of...
  7. L

    New and waiting....

    My fiancé started struggling with occasional slurred speech a year ago. Mostly when he got tired or really stressed out. Went to his doctor and he said it was most likely stress. He ordered a Cat scan(clean)and said to work out and diet and things would improve. He never had time to work out...
  8. P

    New diagnosed 7/18/2013

    Hi everyone....Im glad this forum is here to help me and anyone else with this horrible diease. My wife and I first noticed my systems by my slurred speech, it wasn't bad, and that was in March. At first everyone thought I was drinking too much or drunk. Then my right arm started twiching...
  9. ysabel

    the falling

    i know I'm not alone on this we all do this... fall due to loss of balance. it only scared me bad when i fell down the last few steps! no injury thank god! but makes taking steps scarier! my primary here is setting me up with neurology to see if i need an assistive device again. on another...
  10. W

    Husband doesn't get it

    Sorry to make so many threads, just don't want to jam so much into one. Just want to vent and get some advice. My hubby just doesn't seem to understand or accept or something what is going on. I've tried to get him to read things online and he won't. And since I don't have a firm...
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