My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...
First, when Eileen was on hospice, I couldn't share all the details of her passing, even now some of it is more than I can talk about on the forum. When the time came, with two pastors, family and friends in the room, I couldn't let a stranger make the final step. So, I turned off the Trilogy...
This van is in excellent shape. Current mileage is 36,200 miles. V6, automatic transmission, FWD. Used for just 9 months. It drives very well, excellent handling, very smooth. Tires are excellent. Manual drop down drive up entry ramp which is very easy to operate, not heavy, & able to...
In February I noticed my right knee started to hurt after exercising in pool. Just sitting on a noodle and peddling it like a bicycle (same as I had been doing for last year). I also continued walking on a treadmill for 10 minutes (1/2 mile) each morning, sometimes on a slight incline to get...
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We are looking for a low cost alternative to a wheelchair van. This would be for occasional outings where I want to use my wheelchair instead of a walker. Since we already own a pickup truck (Toyota Tacoma), we have been looking at a carrier that attaches to the trailer hitch. Does anyone have...
We had a wonderful month-long trip to Yellowstone. We arrived on May 20 and departed for home on June 18. It was a long and wonderful trip. My two sisters joined my wife and me for the last couple of weeks of the trip. My friend Greg and my adorable 7 year old goddaughter were there for the...
My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
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I really don't like the standard PWC headrest. The rear projection is significant and while just a small issue on the Quantum it becomes a risky issue on the shorter Whill. Even a tennis ball is only a band-aid. Especially a hazard while strapping the PWC in the van. So, I modified it and...
How often will insurance pay for a wheelchair- is it one per every certain amount of years? And how hard is it to get approved? I can still walk but fatigue utterly after short distances. I'm worried if we request a wheelchair eval insurance will decide that my ambulation is not impaired...
Anyone else been tested or positive? Curious.
I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...