Hi. Let me just say that I honestly appreciate anyone taking their time to reply to my question. I'm overwhelmed with anxiety the past couple of weeks as I have 4 precious kiddos to take care of that need me.:| Last spring I started experiencing some leg weakness in both legs. I saw the Dr and...
Hello all,
So glad this forum exists.
I started noticing a weaker left leg about a year and a half ago - thought nothing of it. Last Feb. I was on vacation in Florida and walked everywhere, felt fine. Last May, walked about 2 km's to pick up my car and noticed a limp - then realized I...
As I am new on here and just posted that we found out my mother has ALS (fairly advanced - no longer talking and barely moving) it has certainly changed a lot for me. I have already canceled a business trip this week and cleared my calendar to be with her as we go through this.
However - I have...
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:sad:
I am at a total loss. My PALS does very well during the day, although he can't use arms or hands so I do everything for him, but he's sweet, funny, accepting and polite. At night it's as if I have a different husband. We are NOT getting any sleep and I am at the end of my rope. This has...
Hello members of the community, thank you all for reading this. I have read the stickies but believe that I could benefit from your additional input. I am a 43 year old male and I am presenting with the following:
In May 2014 I presented to my primary care provider (PCP) after experiencing...
I'm sure this will be Ron's last vacation since he's progressing so very very fast :cry:
We had booked a cruise for next December but we will cancel that one. We decided on booking one sooner (think we booked in November after Ron's diagnosis). We will be leaving mid-April, travelling by plane...
Still trying to make sense of this 26 months, 15 day journey through the ALS maze. Now that my husband is free, I want to do something that will honor him, and help others struggling with all the ins and outs of doing the best for our PALS and still preparing for our lives without the people...
Hi All,
Don't really know where to begin, so I'll just jump right in I guess. Some of you know my situation from my earlier posts but I haven't been that vocal recently because I'm too tired and overwhelmed. My mom (87 and diagnosed with bulbar onset almost 2 years ago, had symptoms at least 3...
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I am recently diagnosed with bulbar onset ALS. Right now my main symptom is slurred speech. This is a scary time for me. My wife wants to take a vacation to the Carribean. Should I be worried about being out of the country with ALS? I'd hate to find myself on a third world island and...
Mother Daughter relationships are so unique. I have come to realize that I am surrounded by men who have no idea about the mother daughter relationship. My mom is in the beginning stages so for now she is holding her own and doesn't need full time care. I will be her primary caregiver when...