vacation

  1. R

    Neck shaking...

    Hi people. The last few weeks my head started shaking in a violent way, even when I lay down. When I sit or stand the problem continues but not as violent as when I am in bed. I bought a cervical collar because of neck weakness but with this head shaking I can't use it because the contractions...
  2. D

    FTD or just difficulty processing directions/information

    My husband was diagnosed with bulbar onset ALS in August (so we've lived with it for 5 months or so now) and his symptoms have progressed. But what has surprised me the most--and has been the most difficult thing to come to terms with or manage--has been the change in how he processes...
  3. K

    2 months of hell

    Well everyone this is the first I've been on in months and just wait till you hear what I've been through! On August 18th ( our 25th Wedding Anniversary), I suffered a massive pulmonary embolism that is also called a saddle embolism. I actually arrived at the hospital DOA, they brought me back...
  4. I

    please help young and scared

    hi, and before i start i would like to say im 14 years old... NOW I KNOW IM EXTREMLEY YOUNG and my anxiety side is probably getting the best of me but im really scared.... i did read the before you post read this thread but still im scared. its been happening ever since august (todays date is...
  5. swalker

    Wheelchairs Galore

    As many of you know, I have been planning to purchase a backup wheelchair. With the wheelchair being in the shop of over two weeks and counting, I decided it was time to get serious about it. After all my searching and investigating, I decided on a lightly used Permobil C500 (non stander...
  6. A

    New to the Club

    Good Evening All, I have been lurking on the forums for a few months now and thought Iwould introduce myself as one of the newer members. I was diagnosed at Mass General ALS clinic on June 3 2015 with PBP. My symptoms started in early Nov 2014 with slurring. For the next 7 months I had blood...
  7. C

    What else could this be?

    hi all, First post here, thanks in advance for any responses. I'll try to be succinct in my symptoms. I'm at the point where I feel like ALS is likely, but still hanging on to hope that it's something else. I'm 28, otherwise healthy. First symptoms 4 months ago, while on vacation overseas. odd...
  8. swalker

    Yellowstone and the Grand Canyon Were Great

    We are back from our extended vacation. This trip was harder than the previous trips, but still very enjoyable. Camping is certainly more of a challenge! My two sisters joined me and my wife on the trip. We had a bit of car trouble on the way home, but more of a distraction than anything...
  9. B

    from time of diagnosis

    Diagnosed with MND on 6/2/15, I will be posting various thoughts/ rantings on this disease. We have all heard/ read that life expectancy is measured from time of diagnosis. Lucky for me, my doctor was on a 3 month vacation before my diagnosis, so that means I get an extra 3 months to live...
  10. K

    Yosemite, Vegas, Death Valley, PCH, Morro Bay vacation

    We just finished a fun, but very tiring, vacation. I always wanted to take my wife to Yosemite, I wish it didn't take ALS to get us there, but it did, finally. My sister and her family joined us, our kids and grandkids for a terrific trip. It can be a challenge to do what each of 17 people want...
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