vacation

  1. G

    Wife diagnosed with bulbar ALS - some questions

    Hello all. My 52 year old wife was recently diagnosed with bulbar onset ALS. Initial diagnosis was by a neurologist Dr. Greg McLauchlin at Baylor, who then referred us to Dr. Harati at Baylor who confirmed the diagnosis a few weeks ago. Obviously it's been a very rough few months for us...
  2. DaChief

    On an Adventure

    My Rhine Cruise adventure got off with a bang. FLight from Orlando to JFK in New York was delayed for three hours so we finally left about 2pm. I settled back, got a beer, then relaxed as I had a few hour layover at JFK before my flight to Zurich. Fast forward to 2am sitting in Boston after...
  3. Lkaibel

    Friends

    I am crabby tonight. My husband is in pretty decent shape. A year out from diagnosis, he still walks with a can and can drive. I think that a walker and no more driving are coming up, I am encouraging these things now gently. Still we are I know fortunate. At a time when some PALS have already...
  4. N

    Vacation update

    At Tillie's request, I'm starting this thread about my decompression vacation. Had this trip planned and tickets bought before I last fiasco. So glad I did. When checking in at home Brian is doing fine, his old self, like nothing happened. I did clear this trip with him before leaving and he...
  5. T

    Do i have ALS?

    Hello, I read the sticky about ALS at the top and here are some of my symptoms. A few months ago I began having fasculations, then i began feeling some weakness in one arm, then a week later i felt weakness in the other arm. I deal with general fatigue on a daily basis. I'm wondering if this...
  6. gooseberry

    Time to reflect

    10 months after Steve has died, we have made it through the holidays. Boy was it tough. It has been very hard establishing this new life. Things I craved when Steve was with us and I felt guilty about, are slowly happening. It is hard to learn to sit and unwind your mind. I have been...
  7. Nikki J

    Vacation

    Hi everyone I hope you are enjoying your holidays I am going to be taking a little vacation from the internet starting tomorrow night (Tuesday night in the US). My lovely fellow moderators will take wonderful care of you as they already do. Everything is fine- this does not mean I am...
  8. A

    Father-in-law possible ALS - clinic question

    Hi everyone. First, thank you so much for this forum! I've been reading a lot in the last several days and now feel ready to ask some questions. Forgive the lengthy backstory, but I feel like it might be important. My 72 yo father-in-law began having difficulty swallowing followed by...
  9. scaredwifetx

    A work trip combined with a mini vacation

    I was in California for the week. I had to go for a work meeting. I flew from Burbank and met my best friend in San Francisco for a three day mini trip. It was a great trip. We visited Muir Woods, Alcatraz, took a catamaran trip around the bay, visited the wharf, and rented a car to drive...
  10. pdcraig

    One dimensional

    Hi everyone, been a long time since I've posted. Long overdue for a bit of a rant. Things have been pretty chaotic for the last couple of months. If it isn't something at work, it' something with my PALS or something with the care facility. Thankfully the home front is relatively calm, only my...
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