vacation

  1. L

    Trying to stay positive...

    Well I am not sure what I am hoping for by posting. In one regard, I have been trying to avoid reading all of the posts here and try to focus simply on what the Doctor has told me but my doubting tends to bring me back to the forum and the more I read the more it seems that I think I will...
  2. S

    The feeling that every day is abit worse than the day before

    Hi, I was just wondering if any of you have the feeling that every day feels alittle bit worse than the day before. PLS is SUPPOSE to progress slower, but it still progresses. Is the progression noticeable to you on a daily basis whereby you feel yourself abit worse than the day before. I'm...
  3. A

    My Husband Joe Ferraro Lost his battle

    Hi Everyone, I know that I haven't been a regular CALS, But I have looked here for guidance in the past 10mths and have received many helpful information. Recently I asked around about traveling to Disney and received helpful information. While on vacation the day before we were going to end...
  4. A

    Hello to all. Help much appreciated! Desperate.

    Okay, I'm going to try to explain this in hopes of someone will be able to offer some insight. 3 years ago I began getting chest pain/cramps and an overall since of illness rangeing from headaches to fatigue. I'll skip over alot and start with last August I noticed alot of heat insensativty...
  5. L

    alternative dental treatment

    Hi Friends, While on vacation in Ca., my sister-in-law, who has always had TMJ problems, made an appt. with her TMJ dentist to see my husband who has PBP. He told him that he is treating another man with serious Parkinson's symptoms and has helped him by evening out his bite so that cranial...
  6. L

    Worried But Als Please Read And Bfs Please Read

    So I got diagnosed 4 years ago with BFS. I experience twitching ALL OVER MY BODY almost DAILY. When I get more stressed out, I have more. I have them in my tongue and everywhere else. When my body is fighting off sickness I twitch more. When im Pissed off, I twitch more. I remember the first...
  7. S

    Just diagnosed

    I am very new to this site and also new to this terrible diagnosis, which has completely halted my life even though I have been suffering with a weak left leg since 2003 and a now weak left arm since last summer and I can no longer type with my right hand. My problem started with a herniated...
  8. K

    Dad with PMA

    Hello, all, My father was diagnosed with PMA about ten months ago. He turned 70 in March. It is rapidly progressing, unfortunately. Over the past few months, he has lost most of the muscle mass in his arms and legs along with about 40 pounds, and has terrible shortness of breath. He's on...
  9. C

    If not now, when?

    This is for everyone who feels frantic about their symptoms, or questions if they have the right to ask for help. It is just a bit of my own philosophy, so take it for what it is worth. It may help, or it may not, but I started thinking about this years ago when we were on vacation in Canada...
  10. quadbliss

    Air Travel with a Ventilator

    We recently returned from a fun New York City vacation. I thought it might be helpful to share our ventilator air travel experience with others, so I added an article to my website.:-D http://quadbliss.com/travel.htm Mike
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