v.a.

  1. L

    Didn't think I would be back

    My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...
  2. S

    Not coping well with fld

    Hi, I am new to this forum. My husband was diagnosed about a year ago with ALS. He is now developing frontal lobe dementia. This has been steadily getting worse for about the last 3 months. At this point when he has had a manic episode, he doesn't seem to remember that whole day. I took him to...
  3. Sequoia

    Salute to veterans who have ALS

    The ALS Association launched a national campaign to raise public awareness of our military heroes fighting ALS and those who have been lost to the disease. The campaign will continue through Veterans Day on November 11th and will deliver key messages about the connection between ALS and military...
  4. Zaphoon

    SIL's sister's boyfriend's Dad a PALS

    I got a call from my son-in-law's sister's boyfriend asking if I'd help move her piano. Since I have the dollies, blankets, straps and experience beyond measure, I said yes. I'd never met this chap before and found him to be very pleasant, as was his older brother. In the course of...
  5. Zaphoon

    PLS - Another "Aw, Shucks!" Moment

    The V.A. has me diagnosed with "Presumptive PLS" (and the PLS doesn't stand for "please"). I have had a bad flare-up involving hip muscles for several weeks and this led me to knock on the door of my team's GP with the V.A. He let me in, examined me and decided he needed a CT scan on my lower...
  6. Zaphoon

    The V.A. Didn't Forget After All!

    I thought the doc had totally forgotten to order the lumbar puncture we talked about during my last appointment several weeks ago. Turns out, he didn't. For those of you that have been following my case, as it stands now, the diagnosis has been PLS since 12/08 (with some question marks behind...
  7. Zaphoon

    More Definiton To Come!

    Many of you have been following my case for the past two years and for those of you that are somewhat new to the forum, a V.A. neurologist, now recently retired, awarded me the ddiagnosed of PLS. My hat is off to the V.A. clinic and regional hospital I deal with in Missouri and Arkansas. I had...
  8. Zaphoon

    Time For A New "Cramp King"

    As many of you know, I've had a terrible time with my legs and other body parts cramping up on a daily basis. After 2 years of this, I finally gave in to a prescription of baclofen. Now that I've been on it for a few months, it is certain that it has helped in turning the cramps down a few...
  9. Zaphoon

    I Got My Cramp Candy!

    The neuro at the V.A. in Fayetteville, AR saw me for the 1st time today. I've learned that the previous V.A. neuro tested me for everything and PLS was what he came up with, yet without having done a lumbar puncture or doing any muscle biopsy. This guy today said I didn't fit the picture the...
  10. Zaphoon

    Shoulder Muscles And PLS

    I've been perplexed regarding the frozen shoulders I have and have wondered if they are frozen as a result of having PLS or if it is indeed just an extraordinary case of bilateral frozen shoulder syndrome (17% of cases have been known to be such). I found a book entitled, "Clinical Management...
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