usa

VA delivered a new F 5. Permobil with more " bells" than ms. Murphys cow. This is a bad machine! More inclined for hard top surfaces like streets. My older frontier is for going off trails,both are great rides. The F5 was handling great yesterday on its maiden voyage ! Steve you'd really...

Well in August I was asked to be in a study for PLS. I was diagnosed 4 years ago. Their are 3 people from TX. Neurology in Dallas that are part of the study. Columbia Univ. is heading up the study. There are participants all over the USA , they are trying, at this point to get base line...

Hello everyone, I hope people with ALS will consider applying to this program and being part of this year's ALS/MND International Research Symposium in Boston in a very unique way: https://alsmndpatientfellows.wordpress.com/ Feel free to follow up with questions of course! Rob

Have any other patients experience with stem cell treatment for ALS at Dr Steenblock's clinic or Dr Bryn Henderson's clinic both in LA in the USA? Thanks Steve

Hi there: My friend has been denied travel health insurance for a visit to the USA from Canada. London Drugs -recommended by the ALS society denied her. She is using a walker and CPAP assist. Does anyone know of an insurer I can approach? thanks

Hi guys, because i don't find a lab in the EU or USA which can make the test, i ask several labs but they only whant to make the test if we are enought. So which one hase intrest in tracking his ALS progression? And whats the best way for you? Blood NF-L (the better way!) or urin p75? And how...

I live in the Netherlands. Many good places for a perfect vacation here. Are there simmilar places in the USA ? example: can a wheelchair accessable room be booked in every hotel ? can a daycare nurse be hired ? Lets start a thread here.

Hi, I wanted to post on my previous thread but it was closed. I had an another emg (5th) since the onset of my problems and it is the first time that I could ask questions and the first time that problems have been detected. The neuro who worked in a french als center before noticed...

Just curious if there are such trials, thanks!

Please don't get the bashing stick after me. I guess I just need to vent. So how much progress have we made since the first case of ALS was diagnosed? Let's see Lou died in 1941. He lasted 2 years post onset. Wow what progress we have made. Seems all the other illnesses have made advancements...