urgent

  1. M

    Symptoms and guidance please

    I'm 33 year old female, perfect health until now. Months ago, very occasionally I started feeling weakness in my left hand, not able to grip. I didn't pay much attention, until it got worse. My left hand is very weak now and unable to pick up anything heavy, also fingers move slowly. It's...
  2. jethro

    Apetite and nonbulbar ALS

    after taking supplements (D, E, B, A, coq10, L serine, resveratol, lithium orotate, magtein, selen, kreatine, ALCAR, hydrolized proteine shakers, bcaa, probiotics etcetc) have no chance to eat normal. therefore i stopped to go to toilet. at least, not often as i used to do. just urgent pee when...
  3. A

    Talk Me Off the Ledge

    Hey everyone. Thank you for taking the time to read my post, I am so truly sorry to the people that have to live with this horrible disease. I am a 23-year old male, caucasian. About four days ago I noticed uncontrollable twitching in my left leg as I was going to sleep. Twitching isn't a new...
  4. Lkaibel

    Hold on Tight...

    Then lose it in the car! My mom is in a nursing home I need to get her transferred to another ( not urgent, another story I just dislike the place muchly). Brian is progressing because ALS moves just one way as we know. Next up is more homecare hours, next up is the simple reality that this...
  5. R

    Just Need Relief

    Hi! I honestly was very hesitant about making an account on here to just to post to this forum. I was diagnosed with generalized anxiety disorder, and I am well aware that what I am experiencing could certainly just be because of that. However, over the last few days, the thought of ALS or any...
  6. C

    Urgent I’m worried

    Hello people reading my thread hopefully. For a month now I’ve been experiencing Fasciculations that are not painful in both of my biceps, chest, back and thighs with less common Fasciculations in my neck. Pretty much Fasciculations everywhere everyday. My grandfather passed away from als. I’ve...
  7. R

    Urgent Action Item - FDA Draft Guidance for ALS

    The FDA has issued its draft guidance and we are in the comments period. The guidance is not acceptable in the opinion of many of us. It "strongly recommends that sponsors conduct randomized, placebo-coltrolled, double-blind studies..." "Historically controlled trials for ALS are strongly...
  8. BlsdMama

    ALS/FTD and fungal skin rashes

    Is there a connection? My grandma had FTD. I remember before things started getting bad how it started and then began to spread and get really bad. The itching was intense. I've had a rash for about two weeks and was putting an anti-fungal on it. Went to Urgent Care yesterday and she said...
  9. P

    Can I have some opinions?

    Hello Everyone, First of all I apologize to anyone if they have this, I mean no offense. Just wanted to list my symptoms and see if anyone thinks this is cause for concern. I am seeing my doctor on the 18th but I have been very nervous about my symptoms. Background, I am a 23 year old male...
  10. L

    Sick Pals...need advice

    I'm seeking advice as neither my Pals or Cals reads the forum. I'm a friend of a Pals and Cals. Cals has pneumonia and is in the hospital. Pals is home with a caregiver. Pals is now coughing. They have tried the vest which helps for a short period of time. Caregiver is having trouble...
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