update

  1. texastc

    texastracy update

    Tracy has had a hard weekend. It is getting hard to breathe. We are awaiting a call back to make the move to the hospital for a trache. I will keep you posted as this progresses. Thanks again for the support.
  2. akaal

    akaal update

    Hi everyone. I first joined this group in 2010 a few months after the passing of my oldest sister from fALS. I have stopped in now and then to read but have not posted much, so I will just give you a brief update of how things have been. In February of 2014 both my younger brother and...
  3. Nuts

    Update on Max

    I just heard from Sandy, who said I could share, that Max has decided to get a feeding tube. He checked into the VA Medical Center yesterday and is being showered with attention. They expect the surgery to be done today or tomorrow. They know everone here is thinking of them.
  4. T

    16 Year old with Fasciculations for 6 months, very worried.

    I have posted about this before, but I would like to give an update. I have been having these fasciculations for 6 months, beginning when I was still at the age of 15. The fasciculations can range from all over my body. From head to toe literally. It can be in my finger, then to my toe, then my...
  5. dkcarl62

    Update on DX

    Hi all, Just an update for those of you who might be following my progress to DX. You may recall that my neuro was ready to call PLS last March, but wanted a cervical MRI first. I'm terribly claustrophobic, and need anesthetic to have the test. But I already had 2 "Normal" cervical MRI's...
  6. A

    Update! News .

    Hello again. 6 7 months ago, i wrote this forum about my concern due to somehow dirty emg and fasiculations. Topic was close now. Here is link for topic: https://www.alsforums.com/forum/do-i-have-als-als/28290-got-my-emg-result-please-help-me-understand-3.html First emg was dirty, second one is...
  7. R

    Update - need all the help I can get

    So over a month ago I posted my issue with all of you amazing experts and was told that in no way shape or form do I have ALS. I am the one who started with an off feeling in my right forearm and then my legs started with to hurt. Then it came to my speech being affected but everyone told me...
  8. Gracious99

    PEG tube update + question

    Raymond did fine, all the discussions about oxygen and ALS really helped us today, I was able to be an informed advocate for him, and shared info with a couple of great nurses who hadn't dealt with ALS patients before, so a huge thank you! Now a practical question, what do we do with this tube...
  9. zoohouse

    Murphy Lives here

    So, I am positive that Murphy live at our house, because if anything strange can happen it will. Lets start at last Saturday, Timothy's son's wedding day in Texas. Obviously Tim was unable to attend in person as we live 2000 miles away, but we did attend by Skype. This is very fitting as that...
  10. H

    Emory follow-up on June 30th

    Hey everyone - I had posted a few months ago, March to be exact, regarding my visit to Dr. Glass at Emory. I came away with a preliminary diagnosis of Parsonage-Turner Syndrome or Idiopathic Brachial Neuritis. My follow-up is in a little under two weeks and I am really level headed, unlike I...
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