unsure

  1. M

    Dr. visit yesterday

    Hello everyone.. After hearing some of your suggestions about my complaints i went to the doctor yesterday. He really didn't seem that concerned (wow thats surprising) he seemed to focus on more of a anxiety issue than anything else. He did however take blood.. on the patient information sheet...
  2. F

    new awaiting diagnosis

    Hi Everyone.... Sorry about the long post:cry: I am new but have been going through the numerous posts here. I have so many questions that I don't know where to start.:confused: I do not have an official diagnosis but have a suspected one. I am sure you probably get tired of answering...
  3. tabney

    diagnosed

    Hello everyone. I have received a diagnosed. PLS. This is good as I do not have ALS. I cannot find a forum anywhere where you can discuss PLS. Is anyone aware of a forum I can join? My neurologists is 85 percent sure of this diagnosed. I am having another EMG in three months to completely...
  4. J

    Bipap question...

    Hi everyone My Dad is 77 and has been diagnosed with ALS for just over a year now. He has been on a bipap machine for 9 months and only takes it off now for small periods of time throughout the day (just to eat). His doctor has been increasing the pressure of the bipap machine now...
  5. L

    Unsure of future

    Hi everybody, I was hoping maybe some of you could read my post and try to give me advise. I have been struggling for 15 months to be diagnosed and don't even have a follow-up with a doctor as of now! It started l11/5/05 when I felt this electrical type shooting in my head, my heart rate...
  6. J

    making life easier

    My mom was diagnosed w/PLS approx. 7 years ago...with symptoms for over 15. At this point, she is completely wheelchair bound and is losing mobility in her arms/hands as well. I would really like to provide items that will make her life easier and was hoping for some recommendations. Are...
  7. M

    Unsure of diagnosis !

    HI All - Its been a bit since I have written - lots going on in the family to say the least! Quick question for anyone .... In the early stages of ALS - does one seem to have good days and bad days. I know this is a progressive disease - progessivly worse that is - so how can it be that we...
  8. M

    I'm a newbie . . . .

    Hello. I am really in a quandry as to how to even present my questions. I'm a physical therapist, and am currently RECEIVING physical therapy. She is actually the person who suggested that I visit this site. I was initially diagnosed with Gluten Ataxia, given that my antigliadin antibodies...
  9. W

    Does Anyone have a clue as to why stress makes things worse

    Well, Athough I may have asked this question before, it still keeps me up at night. Dad dwells on some pretty silly things. This is dad and we are not going to change this about him. In any case when he does this it really makes the next few days not so great. He will be tired, slur his...
  10. J

    trach?

    Hi again everyone, My Dad was diagnosed with ALS 6 months ago. He has been on the bipap now for 2 weeks. It worked well for the first week or so but we can already see that it is becoming less and less effective. Our family doctor told us that the next step is a trach. I have discussed this...
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