unknown

  1. M

    Things are getting pretty real...

    Hello! I haven't been on the forums in quite awhile. Tonight I decided to log on and thought I would share some of what I am feeling, since you know all to well what I am going through. Quick background.. my husband (PALS) was dx'ed Sept 2015, he is currently 40 years old. Since then we have...
  2. BlsdMama

    Does it sound like ALS?

    Have had a spastic/rigid muscle above the knee for a while now. But now I'm having a problem with foot drop/drag - about two months. Have tripped and actually fallen twice, but most of the time it just causes me to stumble. Went to family doctor - no noted issues, referred to neuro. Took a...
  3. C

    24 and Terrified

    I've flirted with the idea of making an account for weeks now, I’ve been unwilling to feed into my own mounting paranoia, and until now I’ve been avoiding looking into the symptoms at all, but I’ve also found myself in need of community and the presence of those who can help me understand what...
  4. B

    Medical expert witness on ALS?

    Does anyone here know of an ALS specialist neurologist who works as an expert witness? It did not matter where they are. I'm also interested in learning of any lawsuits that claim certain events or exposures caused/triggered ALS. Even if they were not successful, I would like to know if any such...
  5. S

    Wheelchair Evaluation

    We have my husband's wheelchair evaluation coming up. Like everything else we've needed to do, we are entering unknown territory. For those of you who have done this already, is there any advice you can give us?
  6. S

    Newbie here

    Hi! I'm Sophie and I have fibromyalgia and benign fasciculation syndrome. I also have finger muscle weakness due to an unknown cause, (emg next week.) I also have generalizrd anxiety disorder which disturbs my life quite a lot. I thought that since I have given many tips how to reduce anxiety, I...
  7. M

    Very concerning symptoms

    Thank you all for reading my post. I will make it as short as possible. I appreciate any replies or thoughts that you can offer. I am a 46 year old female. My symptoms started in August during a time of high stress and also the rabies vaccine series. My GP and the CBC states the vaccines should...
  8. NotALS!

    Misdiagnosed 4 times

    Hi. I want to share my ALS journey with others to let them know that it is possible to be misdiagnosed with ALS. Since my story spans 8 years, I will try to give a brief synopsis of what cured (yes, I said CURED) me. It started in 2009 when I lost strength in my left hand. It quickly spread to...
  9. H

    Dealing with anticipatory grief...

    First time in a forum! I'm not sure how to start this but... I am the caregiver to my wife and we were diagnosed on June 6th, a month ago. BTW I have been using the royal "WE" when it comes to my wife's health for a while now. Margarite (not her real name) was diagnosed with Crohn's disease in...
  10. Z

    Seeking insight, 21 yo with als symptoms.

    Let me preface this by saying how appreciative of any responses I might get. To those on this site affected by als, you are in my prayers every night. You're determination and unwillingness to quit is an inspiration. We lost a good family friend to als and I have a rudementary understanding of...
Back
Top