unknown

  1. lisa g

    I would like to introduce myself

    My name is Lisa and I was diagnosed 1 week ago with ALS. My neurologist is such a compassionate person, she cried with me while giving me the diagnosis . Her and her husband are a neurologist team. While they suspected ALS the EMG confirmed it. I would like to say that they were fantastic with...
  2. B

    Revisiting the Neurologist

    To preface — I’ve read the READ FIRST posts, so I hope all details below are relevant. 29 year old, smoker for 8 years. About 3.5 years ago I noticed minor tightness in my throat that I payed no attention to at first. Over the course of time I became more aware of slightly labored breathing...
  3. S

    Scared & Anxious

    Hi everyone, Am a 27y woman. It all began in June this year, when I was under a lot of stress due to lack of sleep and travel. I was tired most of the time, My left thumb started aching for unknown reasons and almost at the same time, I had some kind of un easy feeling in my left eye...
  4. B

    Thinking of Others

    Receiving confirmation of ALS creates feelings of shock, fear (or terror) and great sadness. It's like standing in a dim hallway staring into a pitch black room. We need to enter, but fearing the anticipated, unknown potential dangers lurking inside, keeps us rooted in place. The longer we...
  5. Nikki J

    FALS and gene testing

    If you are or are likely to be FALS, have ALS and have not been gene tested please do so unless the family mutation has been identified It is becoming really important for practical reasons that your family members have that information. There are multiple mutations and there are some that...
  6. M

    My Wife

    Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
  7. J

    Dizziness and ALS

    i came to doctor because of dizziness which started 20 years ago and it reached culmination when i visited neurologyst in 2015. he looked me and sent to psychiatryst (suspicious BIP after dialogue). visited another one looking for second thought, he also sent me to psychiatrist. i did all the...
  8. affected

    Cough assist

    These are almost unknown for ALS in Australia. I have a friend PALS who needs one and they are being told that you must have diaphragm strength and they are only a very short term solution. The PALS is having some distressing episodes where he cannot cough and I'm unable to get any help...
  9. R

    My story-A family history of ALS victims.

    (Sorry for the long post, for all who don't want to read through my story, you can simply skip to paragraph "8" to review the symptoms and advise. 1) Hi, this is obviously my first post here. I am 27 years old male. I have a healthy semi muscular body, I was a good athlete in the past and took...
  10. T

    I feel like I'm stuck in limbo. Any advice would be appreciated

    Hello, Before I get started, I want to thank all the PALS and the caretakers for answering these questions. I am a 25 year old male. I do not have a history of illness, and I also do not smoke/drink. I was in good shape 6’1 175lb, and exercised regularly before it all started. It all began...
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