undiagnosed

Just wanted to give everyone an update. It has been confirmed that I do NOT have ALS, but I do have paraneoplastic syndrome. So, my neurological problems are the result of an undiagnosed cancer. It is entirely possible to have the neurological symptoms and antibodies associated with a PND...

A few pieces of advice to make your tenure with us more pleasant for all. ALS and the other MNDs are very rare diseases. The incidence of ALS in the modern world is about 2 cases per 100,000 people. That means that there is a 99.998 percent chance that you don't have it, unless a doctor...

Still on the testing merry-go-round. I got the results of my esophageal motility test today, and I can add "unspecified dysphagia" to my increasing list of documented symptoms. So far they have ruled out MG, MS, thyroid & Lyme disease, and pretty much any auto-immune disorder. I have had...

Hi there, I'm really hoping you guys can give me some advice on a couple things. I know you aren't doctors, but I know there is a lot of experience here. I won't bore you with the details of the past 8 months, but basically I have abnormal emgs, ncvs, and spinal tap. All of which the doctors...

Hi all - I have a question. I'm in the very early stages of this disease, and my life prior to this consisted of weightlifting, running, etc. In fact it, i think it was why i was able to catch it so early - I still have no strength loss in my day to day activities but when lifting heavy weights...

Hi Everyone! I have been wanting to post on here for a long time and I am just going to do it! This post is intended for the individuals looking for an answer and who have NOT been diagnosed with ALS by a doctor. Over 2 years ago I experienced some very disturbing symptoms that ultimately...

Hey folks. I think I'm posting out of pure confusion and frustration because I have no idea where else to post. Where do you go when your doctors don't know what's wrong with you? When you don't fit any neat or obvious category of diagnosis, but you keep getting worse? I shouldn't post here...

Hello, I stumbled across an article which discusses Cervican Spondylotic Myelopathy and the differential dianosis of ALS depending on symptoms. My understanding was that ALS patients will not have any lesions showing on MRIs. This is the first article I have read which says that a c-sine lesion...

First off..I'm still undiagnosed with anything other than being about 9 sizes smaller than 4 yrs ago. I was about 160 lbs then so... Anyways.. I wonder if anyone has this problem. My doc has sent me to a whole host of specialists on various occasions and they're all located deep within the...

Since 1997 my husband (now 70 yrs. old) battled a series of strange symptoms which weren't definitively diagnosed until he became a patient in the Undiagnosed Diseases program at the NIH in Nov. 2009. The diagnosis is frontotemporal dementia with motor neuron disease closely related to ALS...