undiagnosed

I feel kind of at home with this group. ALS didn't seem to fit cuz I've been on a slowly progressive decline for 13-15 years now. I was in my early 20's when I started limping on my r. side. I'm 39 and have been scooter bound for 7 years. I wish I had done more when I could. But the progression...

4 neurologists later and i'm still undiagnosed...basically. its been suggested i have pma, but what i read about pma is that reflexes are not good. well, mine are good. and i have no pain; as it seeems others with pma have pain and poor reflexes. any suggestions?

I wonder if some day, docs will find a way to diagnose ALS way before symptoms become obvious... As far as I a concerned, my real problems started three and a half years ago, but thinking about it, I can date back my first symptoms to more than ten years ago, when I started having what I though...

This is the first time i have written here, my mom was diagnosed in september 2011, My mom is a very independent woman, and to today i can not find the courage to confront her with her diagnose, she does not know what this disease is just like i didnt either, but the more i look and find out and...

Hi Folks, 44yr old man I started over a year ago to notice strange sensation in left hand when typing at night. Then both muscle atrophy and weakness when doing tasks like driving(holding steering wheel), holding phone and fatigue when doing repetitive tasks with left hand ,but also right. Also...

Hello, I was wondering if anyone has gone to John Hopkins and if it was helpful for them, especially those with undiagnosed cases? I'm considering making the trip if I can get an appointment. On another note, has anyone had butt problems? I know it sounds silly. But I remember reading a...

Hello, I am new to this forum so please bear with me. I am a 43 year old male who started to experience occasional twitching at the corner of my mouth in June. Near the end of August I started with more severe twitching in both my calves. The twitching has continued throughout my body but...

Ultrasound in diagnosis of ALS There has been a new article just published about the use of ultrasound to detect fasciculation. It's far more sensitive in picking up fasciculations than EMG. Fasciculations it appears has been given more weight in the diagnostic criteria for ALS. So now will...

Hey friends—as some of you know, this summer I decided to become more pro-active in figuring out what’s been causing my ongoing neuro and neuromuscular issues. An ALS specialist told me that it wasn’t ALS, an assessment I very happily agreed with, but I was concerned with the fact that my...

i've been taking adderall for about 5-6 years now. 5mg 3x a day. my MND began a lil over 3 years ago. is there any remote possibility that whatever amphetamines do to the brain, be the cause of my (still undiagnosed) ALS,PMA,Hirayama? i've read here that some doctors have prescribed...