undiagnosed

  1. ysabel

    no more apologies

    Im not apologizing for me any more. My shoulders are slumped down and i think thats why im having trouble holding my head up. My walking is so slow that i used to get to the corner store over here in 3 minutes tops now it takes me 15 minutes! im tired of apologizing for being slow. I refuse to...
  2. S

    please help. undiagnosed weakness and twitching.

    First I would like to say I am new. I hesitated asking questions here because I have been putting my time researching into other possible causes and so far they have all been ruled out. I know there are many people that ask questions here because they get a twitch one day and have no real...
  3. K

    After a year and a half...

    I see so many posting about limboland so thought I would chime in. I have had symptoms for 1 1/2 yr, pretty much the same, my leg has some atrophy, it's gotten a little worse but not major, no weakness. My main problem has been with my mouth. The way I would describe it is trying to talk when...
  4. T

    Waiting is the hardest part (undiagnosed)

    Hi everyone, I'm another undiagnosed and I'm really just looking to vent a bit. It almost seems the waiting is worse than knowing for sure what's wrong. I'm a 32 yo male, and my issues started nearly 2 years ago with a sort of tingling sensation deep in my left calf. No visible twitches. I...
  5. S

    Undiagnosed

    Obviously, nobody wants to be diagnosed with ALS or even think they have such horrible disease. So this isn't so much a "do I have ALS?" question as it is more of a "what could it possibly be?" and I think this is where the anxious and stress comes from. I want to find out what it is and get it...
  6. S

    New Here - Hoping to help and get help

    Hello everyone, This is my first time posting and I'm hoping to get a little insight from more experienced people and share some of my own insights for those who are having symptoms and are undiagnosed. I've spent this entire year researching and in doctor's visits and am a medical...
  7. H

    Still undiagnosed

    Hello, I’ve been visiting the forums for the last few months but this is my first post. I’m a 38 year old man and in March of this year I started having some symptoms that mostly included dizziness, tingling, weakness in my neck that would come and go, and what felt like mild heart...
  8. rose

    Newcomers "Meet and Greet" Rec Hall aka Party Room

    Although I am not new to this forum, I can see where it might be a bit intimidating to jump into one of the other social "off topic" threads. My "vision" (ha ha, what a grand word) for this newest venue, is that those who haven't really had a chance to get to know others, whether because...
  9. M

    Undiagnosed ....familial als?

    Hi. Ive posted on the PLS forum but have realised i dont seen to fit in there with my symptoms. I have been told that I have a neurological condition after being referred to a neurologist and genetic dept. I have upper motor neuron signs including brisk reflexes and spasticity in my...
  10. H

    Think I belong here...?

    I feel kind of at home with this group. ALS didn't seem to fit cuz I've been on a slowly progressive decline for 13-15 years now. I was in my early 20's when I started limping on my r. side. I'm 39 and have been scooter bound for 7 years. I wish I had done more when I could. But the progression...
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