undiagnosed

  1. L

    Monomelic amyotrophy

    I have been undiagnosed for 8 yrs. I started having weakness in my left thumb and eventually got atrophy of median nerve. No other symptoms for all these years. About 8 mths ago I started having muscle weakness in the upper part of my arm. They have tested me for auto immune and all other...
  2. C

    Weakness and exhaustion

    Hello Friends: I've been reading this board since January and understand the stickies and also have great admiration for the time and effort you'll spend talking to undiagnosed Joe Blows out here who are just worried out of their minds. That said... In December, I had a strange incident...
  3. Nikki J

    Do NOT open multiple threads - read this if your thread disappeared

    ONLY open one thread in the "Do I have ALS?" (DIHALS) section. Multiple threads will be deleted or merged. If you have additional questions or follow ups please stay within your original thread. Why? It is diificult for "People with ALS" (PALS) to go back and read what happened before. Be...
  4. K

    Waiting for DNA results for dad

    Hello, I'm new here. My dad has just been diagnosed with MND. He's 68. The doctor told us last week that she is about 50% sure that it's familial MND. We have no history of it that we are aware of but my fathers mother died in her late 50's from an unknown illness. She was very frail and...
  5. I

    Lacking feedback from doctors and internet just scares me

    Hello Short about me, 35 male from Norway, read the stickies and tried to understand them to their fullest. I also apologise that his post may be a bit long, but I will try to paragraph it as good as I possibly can. I will not in any way expect you to either read or answer, so if you do I will...
  6. C

    Recently diagnosed

    Hi: I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my...
  7. P

    Clean EMG too early?

    Hi. Wondering if you can clarify something for me. I have had a slew of medical issues (mainly headaches/neck issues) for the past 6 months. That progressed to a constant stiff neck and shoulders which would have a burning sensation at night making sleep impossible. About 2 months ago, I...
  8. D

    Need some help with this thanks

    Hi, I am so sorry to be writing on this forum with a undiagnosed problem but I have been in shamble the past week or two. My heart goes out to all the people who have this disease and are dealing with it as we speak, my thoughts and prayers are with you and my god ease your pain. Since Dec or...
  9. L

    Understanding the EMG

    Hello, I am new to the forum because I am a little worried because things have not been properly explained to me and because of that, I still have fears. I am a 27 year old male and my story begins this past September: In about mid-September, I began to notice soreness in BOTH of my calves...
  10. M

    It just got crazier

    Hello everyone., I hope that you have had good holidays so far. This is a very blessed time of year, but also a hectic time. Now for my story. Hopefully someone might have advice that I can use, or maybe just putting this down in writing helps me to not feel so overwhelmed. I am the wife...
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