undiagnosed

  1. M

    12 months struggling, still no diagnosis

    Hi, my husband has some neurological problem, as yet undiagnosed. His legs feel heavy and stiff to move, particularly walking up stairs or slopes, he says it is like wading through chest deep mud. There is no pain as such just an almost physical resistance. Like he is wearing a lead suit. He...
  2. K

    Conflicting EMGs.. Long post sorry

    Hi there. This is my second post here. I am a 40-year old Asian male from Thailand. I will try to be clear with my English. Thank you so much for taking your time to read my post. My apologies for a very long post. First of all, I have read the stickies many times to try to convince myself that...
  3. C

    Sick and frustrated /pending diagnoses

    You are an amazing group. Your posts have helped me through a very rough three months of symptoms and no diagnosis. After ending up in a ball in my backyard weeping 30 minutes ago, it seemed a good enough time for my first post. Perhaps given the length of my first post, I will be banned from...
  4. BlueTrain

    To those contemplating posting in the DIHALS section

    I decided to write this message as I understand that my first post in the DIHALS section has caused some concern among some of our undiagnosed members. The purpose of this post is to clarify a few things and to explain why you should not compare your situations with mine. To begin with, at no...
  5. M

    Un-diagnosed for 7 years - recap and update

    Hello everyone, I have stayed off this forum for a while as I do not have an ALS diagnosis and I wanted to avoid being disrespectful by bringing up conditions that probably don’t scratch the surface of what some of you are going through. However, I was exchanging a number of visitor messages...
  6. N

    Emg states Myopathy or MND...

    Hi. I am 46 and last week went to neuro as I felt my left leg getting weaker. I do have undiagnosed SFN, which I thought was contributing to my weakness. I was surprised when the neuro stated that I had myopathy, never heard of it, and that he couldn't help me anymore. He was referring me to...
  7. lgelb

    Important READ BEFORE POSTING! Getting a diagnosis

    If you have a sudden loss of vision, the worst headache of your life, unexplained chest/arm/back pain that does not go away and/or sudden unexpected paralysis in any body part, stop reading now, have someone drive you to the emergency room or call 911. So, you’re worried about a...
  8. A

    Undiagnosed neuromuscular condition!

    My doctors acknowledge that I have some form of neuromuscular issue and its not just anxiety. I am getting weaker and my appointment with another neuromuscular specialist is in November. I am not pursuing an ALS diagnosis but I want to know what i have . I may have something treatable and that's...
  9. R

    Confused and scared by doctors need feedback please

    Hello all, Firstly I wanted to say that I read your note to new members and so I believe what I am posting is legitimate (though I would love for you to tell me I'm being crazy, I'm not longer sure of this). I have been reading these forums for months now and am only just posting because I am...
  10. T

    It's not always ALS

    So I've been at this process trying to get a diagnosis for three years now. It's been a hard road. I am still in the Army and have been for 17 years. My disease process and diagnosis has literally been all over the place! I'm no faker or malingerer, quite the opposite. I was used to running five...
Top