1. R

    Bulbar Symptoms

    Hi, Anyone out there with bulbar onset PLS. My hubby Dave (currently undiagnosed) has speech, swallowing, emotional lability, slow blink reflex, excssive yawning. It has been over 3 years now, still no lower motor involvement. Thanks in advance. Raina
  2. R

    Undiagnosed Bulbar Symptoms

    Hi, First, thanks for the Forum. I have spent a while over the last few months checking out the posts here. This is a very useful site, I have spent 3 years trawling the net for info. We are interested in talking to anyone who has similar symptoms to my hubby Dave. Dave has an undiagnosed...
  3. R

    Need Advice

    I have been through a rough time the last 2 years. I became very fatigued right after a move to our new home and soon developed tripping while walking and a tremor in my right hand. I was diagnosed with Parkinson's a few months later. The medication the docs put me on kept getting stronger and...
  4. Jamiet

    Undiagnosed with serious symptoms and questions

    Hello all, I've read alot of the stories here and would like to share mine to get ordinary lay persons opinions whom are living these nighmares that we share. My symptoms started in Aug 2006 with widespread twitching. Nothing thought of it, however, went to neuro in 9/06. Stated it was...
  5. B

    I need help

    Hello: My Mother is 72 years old and has since May become progressively weaker, starting with foot drop that has progressed to the point of uselessness. Her other leg is starting to become weaker and she uses a walker. She has seen 4 different neuros and has had many tests sometimes several...
  6. S

    Hello from Kelowna, B.C. I'm New

    Hello everyone, I just wanted to introduce myself. My name is Sue Born ,handle on the forum SueQ . I'm a full time daughter and caregiver to my Mom who is 62 and was diagnosed in June 2005 with bulbar onset ALS. She went undiagnosed for 1 and ahalf years, so really she has been living with AL...
  7. S


    Hi, i'm 25 and a mother of 2. I've had strange symptoms since I was 20 but the symptoms haven't progressed until now. I saw some doctors when I was about 21 or 22 but then gave up cuz I was getting no where. I have muscle twitching all over my body but i'm use to it now, it's hard to breath in...