undiagnosed

  1. M

    Pain with PBP?

    I am as yet undiagnosed but have many of the symptoms that are leading my neuro to consider ALS. However one thing he is consistent on is that there is no real pain associated with PBP or any bulbar ALS symptoms which does not fit with my presentation. I have pain in my throat and my tongue and...
    • mamaoftwo
    • Thread
    • als als symptoms atrophy bulbar bulbar als diagnosed pain pbp symptoms tongue undiagnosed unknown voice weakness
    • Replies: 1
    • Forum: Progressive bulbar palsy
  2. L

    For Undiagnosed...Look to the Past

    For those of you who are suffering an illness, are undiagnosed and not sure if you have atrophy or any kind of changes....I looked through hundreds of pictures today, to make a collage for my daughter's 16th birthday, and what I found made me feel much better. I fell upon pictures of myself...
  3. myooshka

    any advice?

    I am completely lost, I don't know what to do. I have an undiagnosed neurological condition and am just getting worse. The worst part of it all is it has really effected my memory thinking etc. My husband works away for twenty days at a time. I don't drive anymore so he fills the house with...
  4. Just J

    Suggestions for the undiagnosed...

    Hello All. I found this forum after doing research today on symptoms that my husband is having. We've been through 2 yrs of hell and no diagnosis (I'll try to be brief). About 2 yrs ago he began having major numbness in his feet. By Aug 2006 his mobility got so bad that he had to give up his...
    • Just J
    • Thread
    • ability als back bed cramps diagnosed diagnosis fasciculations lyme mobility muscle muscle weakness no diagnosis pressure reading research shower story surgery symptoms undiagnosed weakness
    • Replies: 6
    • Forum: General discussion about ALS/MND
  5. M

    Life insurance and long term disability

    Does anyone have any expertise in this area? I am as yet undiagnosed but have an appointment next week with the neuro. Everyone has kept saying to get life insurance and/or long term disability in place before an official diagnosis. Despite my efforts, I have been unable to find a policy that...
    • mamaoftwo
    • Thread
    • advice death diagnosed diagnosis disability early family financial insurance life life insurance long term disability love money problem support undiagnosed work
    • Replies: 14
    • Forum: General discussion about ALS/MND
  6. M

    New here and need support

    Hi there I am a first time poster but a long time lurker. I have finally gotten up the courage to join you. As crazy as it sounds, I was somehow afraid that if I joined the ALS forums, I'd be jinxing myself as it were into getting the final diagnosis - which of course, scares me as much as any...
    • mamaoftwo
    • Thread
    • 2nd opinion ache als anxiety arm atrophy balance brain burning clean emg clinic clinical cold diagnosed diagnosis emg family foot gabapentin go away heart hope immediately life lyme mri muscle new here night paralysis physical therapy problem problems reading scared shaking steroids story support swallow swallowing symptoms tests therapy thumb tongue tremor twitches twitching undiagnosed wanted weakness weight loss worry wrong
    • Replies: 12
    • Forum: Could this be ALS?
  7. P

    Very worried wife new to the forum

    Hello everyone. Over the past 6 months, I have visited this forum daily for inspiration and questions to bring with us to my husband's neurology appointments. You have all been a huge help to me. I hope you all know how amazing you all are! Thank you for being so open and for just being you...
    • pmbenb83
    • Thread
    • abdominal athletic back ball children clinic cramping diagnosed diagnosis early emg family fingers headache hope kids love medical mri muscle muscles neurologist neurology questions shoulder spasms stages story surgery symptoms test twitching ultrasound undiagnosed wife work worried worried wife
    • Replies: 4
    • Forum: Current caregivers
  8. M

    A thread of hope

    I have not been on these forums very long only about a month.. I am very thankful for everyones help and the suggestions i have gained from some of you. Those of you with ALS you are true heros in my book, you are fighting a battle that has yet to be won but hopefully someday we will overcome...
    • monkey
    • Thread
    • advice als anxiety bed book clean emg cramps diagnosed emg hope mad medical muscle muscle pain never give up pain problem problems spasms twitching undiagnosed weakness wrong
    • Replies: 7
    • Forum: Could this be ALS?
  9. L

    For all the Undiagnosed, you have to find it funny...

    If another person who is undiagnosed posts(IE myself) post there symptoms and concerns all the rest post words of encouragement. Things like its most likely not ALS, you are OK, etc. But if you back and read there posts, they posted the same concerns and "assume" they have ALS just as much as...
  10. S

    Do I have slow onset ALS?

    I just want to say that I am thankful for this website, and anyone that can offer some advice for me. I know that this is a very hard disease to have, and I am praying for those that are diagnosed with it. I have many undiagnosed symptoms and am wondering if anyone with ALS had symptoms that...
    • scgal
    • Thread
    • advice als als? awareness back diagnosed flu heart helpful money mri muscle neurologist onset pain problems sleep symptoms tests twitches undiagnosed website
    • Replies: 19
    • Forum: General discussion about ALS/MND
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