undiagnosed

Most of you know me and know that i am undiagnosed.... I had another occurrence where laughter caused me to have trouble breathing and this time alcohol was not involved! I was at my moms laying beside my hubby watching a movie with the family, when my sons friend did something really...

Hi, all! I've got a question about this as yet, undiagnosed debilitating thing I've got. What do you do when you notice your weakness is spreading into new muscle regions and fear you could soon be unable to work/function in your current occupation with your next visit to the neuro 3 months...

Hi! I am fairly certain I have ALS and just need to talk to someone who may have/may be going through the same things because I FEEL this, but no one can SEE it. I am having internal tremors 24 hours a day. My entire body shakes inside, but you can't see it when you look at me. Also, my...

:cry:Hello everyone! Today is my first day joing the forum here and I do hope I get to meet some very special friends. I really need that right now due to an illness that so far has been undiagnosed. And I am getting pretty darn scared about right now due to the disorder getting worse instead of...

Most of you know my story. So Ill just get to the point. My wife and I are both 29 years old. We have been together for almost 8 years and married for 2. We are pretty well established as we own a house, have limited debt, etc. We are ready to have a child. Im undiagnosed and have been having...

Here I go again, beating the seemingly dead horse of IPLEX. While there is no research available to fully substantiate the claim that IPLEX either slows progression, or reverses symptoms of ALS, I have been able to contact patients that were able to take the drug, and from what I have read...

I'm still in the early stages of something (still undiagnosed) and will have to travel soon. My symptoms are mainly spasticity, cramps, balance and weakness. Does anyone have any advice about flying with these symptoms? I'm still pretty mobile but I do use a cane to assist with balance and...

Well, Monday I went to see the Neurologist, Dr. Leo deAlvare, for the ALS Clinic at Lady of Lourdes Hospital in Lafayette, Louisiana, for the pre-screen to the ALS Clinic. After reviewing all my medical records, and giving me a full examination, he shocked me by saying, "I do not believe you...

Hi everyone, I have not been diagnosed with ALS but so far I have Spasmodic Dysphonia (a voice disorder), Cervical Dystonia, Peripheral Neuropathy and Fibromyalgia with other things thrown in there. My grandmother had an undiagnosed voice disorder, very hard to understand, my mom's cousin...

Hi Everyone, I applaud you all for fighting on and also for the compassion you share on this forum. I've been reading for a while and thought it was time to post before I lose my mind completely. I'm 43 (M) and a father of 1 son, with another (son) on the way this May. Live in NJ...