turkey

  1. A

    Swallowing issues

    Hello again... Nothing new from the dr's since we were last there 3/17 when they said my husband had pseudo bulbar palsy (although the report from that day says bulbar palsy and suspecting bulbar ALS) EMG is scheduled for 4/21 The question I have is in regards to swallowing. My husbands diet...
  2. S

    Allergies or Bulbar ALS?

    Good day. My name is Steve. I'm a 37 year old male from Wisconsin (Go Packers!) A few months ago, I started having body wide twitching. I didn't think to much of it, because I am very active and thought that my muscles was just over reacting to the strenuous activities. But as the months...
  3. KimT

    Levels of B Vitamins

    First, I've not started taking IM B-12 yet. I see my doctor again on Monday. My local neurologist has an interest in DNA testing for various things. He doesn't charge for this part of the blood work. He is in favor of my starting IM B-12. I've been taking sub lingual B-12 for awhile so I...
  4. C

    Suction machine is weak?

    My PALS (bulbar palsy, PEG, no food or drink by mouth) got his Devilbiss suction machine a few months ago, tried it a couple of times and decided spitting was more efficient. He's been spitting/wiping ever since and struggling with thick, pasty phlegm however he can. We had the technician come...
  5. S

    I am 19 years old and probably i have als ....

    Hello everyone. Firstly sorry for my english. Somewheres am gona use google translate. I am 19 years old , living in Turkey. And Probably I have als. Yes i know , you thinking you are too young , but stephan hawking was 21. My twitching started 2.5 monhts ago . I always wake up night for...
  6. M

    please help !

    I need any insight I can get my dads symptoms started in may 2012 with weakness in his right hand now he is a complete paraplegic but his breathing is totally normal and he swallows with no issues. Back in 2012 my dad had a cancerous tumor removed from his vocal cord, the cancer scare made my...
  7. A

    Got my emg result. Please help me to understand

    First of all, Hello everyone. I'm Utku from Turkey-22 yo It's all began two weeks ago with twitchs all around body but especially right leg. And there was strange feelings on right leg and arm. I was pretty scared and getting nervous about it. In two weeks, twitchs became less. So decided to...
  8. L

    Sorry For Disturbing

    Hello to everybody. I wish all people here getting well soon and i pray for it everytime. I m male, 33 years old and from Turkey. 45 days ago suddenly i felt a weird pain on left side of my head and after it on my left feet weakness started. It was a so strange feeling coz when i was walking i...
  9. Grumpy'sWife

    Thanksgiving, Grumpy's Birthday and Mine too!

    Grumpy and I want to wish everyone a happy Thanksgiving! Today is also Grumpy's birthday so needless to say it feels like our home was invaded by everyone and their brother. Since tomorrow is my birthday, everyone decided to drop in even if they didn't stay for dinner. We cooked a 22 pound...
  10. Z

    Joint Photo Exhibition: A special project for ALS (amyotrophic lateral sclerosis)

    Jointly organized by Tahir Ün and Ali Var, the exhibition "1 + 40 - Ali" will welcome visitors in Gallery Diogenes in İzmir (Turkey) from 11th to 31st October. The importance of the exhibition is based on many reasons. First, it is 40th year anniversary of Tahir Ün's photography. Ali, who is...
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