tube feeding

Hi all, My 82 year old dad has just (Wednesday) been diagnosed with MND. He has been having swallowing difficulties for about six months, and kept being told by his doctor that it was a sad but inevitable fact of old age. Then his speech started to slur, as though he was drunk, and I insisted...

Not only do I have lots of photos of the blended meals (for tube feeding) I included what Medicare requires for documentation, in case this is something you are interested in looking into. Welcome! | Tube Chic | Living well with a feeding tube

I have read that pineapple juice is supposed to thin mucus. Do you have to drink it or can you put in tube?

Hello everyone, I just now posted about this in the general discussion forum, but wanted to make mention here too. I had started a blog on tube feeding, but did not develop it, nor keep it active. After almost two years of it just languishing (and me paying for web hosting!) it is now up and...

It has been a long time since I dropped off of this forum. The losses of those I'd grown close to got to be too much for me. I grew to feel overwhelmed with a kind of "survivor guilt". And, it breaks my heart now to see who has passed, without me knowing. However, it was good and much...

Hi my mom has bulbar ALS and recently got a peg (not npo yet but pretty close to it). She also has Chrones disease so is suffering from dehydration. Does anyone have experience with this? Suggestions? Obviously it's a question for the doctor- she has been in hospital 3 days with no solution...

Tube feeding help.... My husband has an ongoing nausea issue, when doing feeding, if I bolus he tolerates about 500ml pushed in about 10 minutes but only twice a day. He stays nauseated all day. Taking 2 different meds for nausea already. Not enough nutrition. We've tried slower over night with...

Just venting as I know there are so many that are much worse off than me but I want to share this day. Woke up at 4:30 am. Could not get back to sleep. Just laid there for 2 hours so I wouldn't wake up my wife. We are now 1 month in to our home remodel so we are living with my parents in their...

Next week is going to be very busy. First I get to have my dynavox unlocked so I can use the Internet. Second I have an appointment with my speech therapist. To start tube feeding I've been chocking on food and some issues swallowing. More mountains to climb but I always make it to the top. Patrick

There appears to be considerable confusion among patients, doctors, caregivers, and regulators about the right of ALS patients to elect who will provide their care. The rule is actually very simple: an ALS patient should have the right to elect who will provide their care—licensed or...