I have been diagnosed with low B12; it is 167. However, I am still having neurological and bulbar symptoms even after 2 injections. I will give this a little time before further testing. My fatigue has gone thank goodness, but my twitches are still there. As of now, I have no slurring of...
It's been awhile since I've posted anything, and I don't want to leave a "hit-and-run" impression or only post bad news. (The two threads I started were "Is this PMA?" on May 25 of this year, and "Questions about the progression of this disease" on July 3. I had some mixed reactions, but most...
But seriously. I am getting into my 30s and was a little overwight. As I would rise from bed the bottoms of my feet would hurt (they would cramp up till I got moving more) (at night they would twitch along w/ my calves and thighs) I joined weight watchers and lost almost 20 lbs so far. The...
I just scheduled the insertion of a PEG for my husband - 7/14. We are waiting until we get back from a beach vacation. Now, he is waffling. Any words of encouragement I can give him? I/We know it is the smart thing to do, it just seems so harsh. He isn't having any trouble swallowing yet, but he...
Several have told me on here that my symptoms are not consistent with ALS, but I wanted to list everything in one place.
1) Widespread twitching (can happen anywhere, but only when resting).
2) Sores in the corners of my lips. Worse on left side.
3) Feels like I have excess saliva.
4)...
This is my first post to this forum, and I first want to express my thanks to and admiration for all of the PALS and caregivers here. That you find the time and energy to contribute to this forum is awe-inspiring and humbling. You have my deepest respect.
I know from reading posts to this forum...
Hi,
I can't believe I'm writing this . . . I'm so devastated . . . my wonderful mom, who is 83 and acts like she's 50, has just been told that NMD is "suspected". She only has symptoms in her mouth - started with throat clearing for about a year (she was told it was acid reflux & put on meds)...
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I have had slightly slurred speech for about 2 months. Trouble with S's primarily and then just occasionally trouble putting words together. Most of the time I sound fine and my husband and friends haven't noticed. My tongue also feels like it no longer fits right in my mouth. It feels a little...
Hello everyone, I've posted a few times, and always feel the warm thoughts and support of all of you here, when I read everyone's words. My mom was diagnosed Oct. 09 with ALS, and in the past month has just about completely lost her ability to speak. That is when you think about how cruel...
All,
new to this site.......am looking for some answers......this is on behalf of my husband.
He has had cramps, twitching,pain, and various other problems, which may or may not be related (such as IBS) for 3 years now. He is a ped. neurologist, so knows about EMGs (and in fact is trained in...