In a prior thread, I had asked if anybody had experience with the Zinger Wheelchair (zinger chair.com). While in Singapore, my husband (PLS for 11 yrs, walker dependent, with bulbar symptoms and slight upper extremity involvement) was able to try one. We ended up purchasing it. It, like any...
It may be hard to tell but it is a snowdrop. As many of you know I live in the Northeast and we have had a terrible winter. Near my door I have a little snow drop that appears faithfully in late February That area was covered by several feet of snow then so I thought it would skip this year...
Hello everyone. My name is Ana. I am new to the forum, but I lingered for a long time at the old braintalk.org forums 13 years ago.
This is my story: In 2001, during a trip to Italy, I noticed that I couldn't pull my luggage. My shoulders and arms felt as if they had lost their strength...
Hope this is where I need to ask this question on this website. I have a friend, been friends for 20 years. Unfortunately this person lives 1000 miles away from me now. I love my friend with all my heart and was so upset when I heard of her diagnosis. I can't afford to go see her often...
Hi all, I didn't know where else to turn to so I thought I could get some guidance here. So here it goes..
First of all let me begin by giving a little background. I am currently a 19 year old college student. I know that ALS rarely occurs in someone my age, but my situation is such that I...
This year the conference in Washington DC iis May 10-13. My husband and I are considering attending and I do like the idea of getting a chance to speak with state senators and representatives. It will be a long trip, though, so we do have some hesitation/concern about going.
Have any of you...
So, I've never been diagnosed with anxiety, however I believe I have it. I'm a bit of a closet hypochondriac, though I try not to go to the doctors knowing that I'm probably putting myself through some symptoms myself. However, before I thought I had anything related to ALS, I had symptoms...
als
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anxiety
back
confused
cramping
diagnosed
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muscle twitch
muscles
pain
problem
running
shaking
symptoms
tests
thumb
trip
twitching
weakness
work
As I am new on here and just posted that we found out my mother has ALS (fairly advanced - no longer talking and barely moving) it has certainly changed a lot for me. I have already canceled a business trip this week and cleared my calendar to be with her as we go through this.
However - I have...
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communication
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family
family member
financial
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insurance
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love
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trip
vacation
wrong
I have still been able to walk without any assistance. Just a few minutes ago I was helping my wife pack for a business trip. I was bending over and putting a computer in a laptop bag. There where some things in the way so it ended up taking about five minutes to do. All the while I was bent...
Just got this from my PVA rep: "Auto grant law just came out. Will be busy working on getting paperwork completed tomorrow."
This means we vets don't have to wait until we can no longer walk to get the auto grant. This will assure a better supply of used ones for the rest.
Many thanks to my...