trip

  1. S

    CALS Trip 2019

    I am bringing up the idea of a CALS, past CALS trip again. I really want to make this happen... When I brought it up before, my loss was so new that I just couldn't get it together. If any of you would like get together for a few days or has an idea of a really good place for a CALS trip...
  2. K

    Grief/ Crying/ Can't Breathe

    Sadly, my sister passed away last week, and the family is gutted. She was a bright light, and we miss her terribly. My 87 year old Mum is grieving hard. Yesterday she was crying with full abandon, and suddenly felt she couldn't breathe. I've read here before that PALS can have spasms, and...
  3. Chincoteaguer

    Back home from hospital

    I apologize for the length of this post but I hope it might help others who have to take their PALS to the ER. We were in the hospital from Thursday morning until noon on Saturday. As I have posted previously the trip to the ER was recommended by our health care nurse based on a false oxygen...
  4. swalker

    Grand Canyon Trip: Fall 2018

    Lori and I had the opportunity to go to the Grand Canyon this fall and had a wonderful trip. As I have posted before, the trips are getting harder, so much so that I have considered cancelling each of the last three trips. I am so glad that I have not! The weather was spectacular and I was...
  5. W

    Is it ALS?

    I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing. For about 10 days I have experienced sudden muscle weakness. I am still a 5/5...
  6. T

    Almost 3 months with symptoms

    35 year old male, fairly active, good physical health my whole life except for some football injuries. Need to begin by saying that I have had severe bouts of health anxiety within the last year, colon cancer, lung cancer, bone cancer, all of which started with small symptoms that manifested...
  7. J

    Denver, CO improves ALS symptoms?

    Hi, I recently came back to NJ from a four-day trip to Denver, CO. While I was there, several of my symptoms had improved noticeably. My ability to swallow water had improved back to the pre ALS levels; the back of my knees which are usually the stiffest part, softened up and made my walking...
  8. L

    Aspiration

    My PALS aspirated his yogurt a few days ago. This is our first trip to the ER because of this. They are doing breathing treatments and suction every four hours. Doing IV antibiotics. SATS staying around 90 until last night when he wouldn’t use his bipap and he was in the 80’s. My daughter came...
  9. D

    ALS fears

    Hi guys, I’m really new to this thread and have read all the information before posting this. I’m really scared at the moment. A few days ago I noticed a sudden weakness in my left leg. This wasn’t gradual and as I say, very sudden. I can still walk properly, walk on my tip toes and I don’t...
  10. M

    Restless at Night

    My PALS was diagnosed in May 2017. He has ALS/FTD, feeding tube placed in May with continuous feed, Bipap starting in May at night, is all upper body and can still walk but will assistance. When he received the bipap he immediately adapted to it and slept twelve hours the first night. In fact...
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