trilogy

Hi everyone. We just keep having one issue after another and my aunt and I are leaving next Friday. First we found out that no local facility will accept a trilogy. We hired in home care 24/7 care last week but have already had several people call in sick at the last minute and last night my...

Before insurance, the rental price of the Trilogy is $1,445 per month! That's down right ridiculous. That's more than a mortgage payment! Thank God we met our deductible for this year but in January I'll have the $5,000 deductible again. Medicare is secondary for me so I don't know if they...

does anyone know if Medicare will still pay for bipap machines like the Trilogy when you go into hospice. They say they only cover comfort stuff, well feeling like you can get enough air is comfort.

I have a copy of my spirometry test results that I had done yesterday. There are a lot of confusing abbreviations and percentages. One nice thing about the report is that they show the numbers of the last test beside the numbers of the current one. I went in knowing that my breathing was more...

We pretty much only have bad days and worse days at this point. My dad doesn't want to take "too much" morphine even though we've been told he's on the lowest dose and often takes only half of that. Today he's gasping for air a lot and having choking fits when not on the trilogy. He was...

Hi everyone. We continue to ride the roller coaster that this monster keeps us on. Yesterday I thought it might have been my dads last day as he slept through most of it and wasn't eating. Today he was alert, eating well and spent several hours off the trilogy. Only around 8pm did he start...

I can't believe that I am posting in this section...my beautiful husband, Lonny, died suddenly this morning at 11:10 am. he seemed to rally last week but then on Saturday started feeling weak again. Sunday was a bad day--no crisis but so weak and could not enjoy a family dinner that we had...

I have been a guest to this forum for a year. My mom started showing symptoms suspicios for bulbar onset ALS or a stroke this time last year. (Her sister died from limb onset ALS in 2013.) Mom's official diagnosis of ALS came on October 14, 2014 from the ALS clinic at UC Irvine. Shortly after...

Sorry for the topic but curious about Fvc and life expectancy. My fvc held steady in the 60s for about a year but dropped from 64 to 44 from Feb to May. Started Trilogy in early June and use at night, but Fvc down to 31% at Clinic visit a couple of days ago. At this rate wondering how much time...

Hi everyone. I first joined this group in 2010 a few months after the passing of my oldest sister from fALS. I have stopped in now and then to read but have not posted much, so I will just give you a brief update of how things have been. In February of 2014 both my younger brother and...