trilogy

Today I had my first clinic visit at the Huntsville ALS Clinic. We were there from 9:30 AM til 3:30 PM. But I saw everyone: PT, RT, OT, dietician, speech therapist, and social worker and MD. And I was evaluated for a power wheechair. They also recommended a Trilogy. I am wondering if anyone has...

Al just received a Trilogy. He can breathe on his own still but the trilogy helps with his energy. In a prefect world he could sleep with it but we cannot do that because the dang thing alarms every half hour or so. Neither one of us gets any sleep. I asked the Rep if the alarms could be...

Hello, I have been paying Cobra since I left my previous company and started at my new company. I needed to keep Steve insured and my insurance was very good with no deductibles. His disability was finally approved today and he now has Medicare A and B. I am having a hard time figuring out...

I want to keep my vent options open. I go off Florida Blue PPO at the end of this month and start Medicare w/ supplement G (same as F only cheaper and you have to pay the deductible) on February 1. I have a separate D plan for drugs. My local neurologist will write an Rx for anything I...

Hello friends in common! My husband has Bulbar onset ALS diagnosed 4/2013. Has a DPS and feeding tube. Eats through tube, can still talk some, can walk to the bathroom (with leg braces) with walker otherwise needs the power chair. Is all there mentally and a very intelligent man. His...

My heart is breaking. Hospice was a disaster. They wanted to take her Trilogy, suction and nuedexta. I couldn't let that happen, as those are comfort items for her, imo, so I sent them away and started to look for another group that would keep the trilogy. She aspirated yesterday while...

My dad has taken a turn for the worst the last couple of days. He has had so much mucus build up that he's unable to cough up. He usually suctioning and won't use the cough machine much because he believes it will make it worst. His oxygen level has been lover so hospice nurses have been wanting...

Looking for advice-- Just yesterday, PALS's shortness of breath increased dramatically. Now needs a breath for almost each word he tries to speak. - His O2 is still in 90s. - He is on Plavix (blood thinner). - His FVC was 60% 4 weeks ago. - Five days ago the RT was here and said his lungs...

Got an email from Duke saying that my insurance denied a BiPap for me because I didn't meet Medicare guidelines. Here's what's frustrating: 1. On October 16th Bcbs approved a trilogy for me, however they refused to pay the $1,450 per month and wanted a rent to own deal. DME company refused so...

I've been putting off posting this as long as I could, just holding on to any hope of a misdiagnosis but after my third clinic visit yesterday, it's time to completely accept the fact that I have ALS. I've been lurking on the forums since my original post on DIHALS in May when I first heard...