1. Nikki J

    TUDCA trial topline results

    As most of you know there was a European trial of TUDCA alone ( it is a component of Relyvrio). Topline results were negative. Announcement of top-line results - TUDCA ALS
  2. P

    Healey Trial - 2 Drugs Tested

    My brother, recently diagnosed with ALS, is going to get into the Healey Trial. Here's what they are currently testing. Anybody with experience with either of these drugs? DNL343 (Regimen G) Oral drug once daily taken with water or soft food Optional lumbar puncture 3:1 Active drug to placebo...
  3. lisa g

    Prime C trial

    Has anyone been getting the 2 medications in the prime c trial through a compounding pharmacy. Before Relyvrio was approved if you chose to pay out of pocket you could have it made by a compounding pharmacy. Was wondering if this was a possibility being both drugs used in the study are approved...
  4. A

    Healey trial

    I was wondering if anyone participated in the Healey trial and did they find it beneficial. I feel like everything is a waiting game. Dr says you are eligible for trial but it takes a few months for screening. Meanwhile, time is marching on. Frustrated
  5. lgelb

    Neuralink enrolling for BCI trial

    More about the device here and you can apply for the trial here.
  6. lgelb

    Small, early ropinirole trial

    Full report here.
  7. H

    Cytokinetics closing down Courage Trial

    Reaching out to see if anyone here has been on the Cytokinetics Courage trial. I’ve been on it for @ 20 weeks (out of the planned 48 weeks) and have been pleased with the result, but am now hearing they are shutting it down. 2 questions… first has anyone been on this trial and if, what’s been...
  8. M

    Interesting trial - Chinese medicine

    Here is the link to the full article:
  9. M

    Healey Platform Trial Regimen F

    Does anyone have more information on the F Regimen of the Healey Platform trial? My husband talked to the recruiter today and she told him they’ll start recruiting in March for that regimen. He can do a 3 hour long appointment to see if he’s eligible but I was also curious if there’s any...
  10. Kristina1

    mexiletine side effects please advise

    Hi I was hoping others who are on or have tried mexiletine could chime in with their experience. Apologies in advance for the length of this post. Background: I'm in the AMX0035 (amylyx) clinical trial in the open label phase meaning we know for sure I am receiving the real drug. I was told...