treatments

  1. Lobster

    Researchers confirm prion-like properties in ALS

    Researchers confirm prion-like properties in ALS 2011-09-20 Vancouver, BC - A team of researchers from the University of British Columbia and the Vancouver Coastal Health Research Institute have found a key link between prions and the neurodegenerative disease amyotrophic lateral sclerosis...
  2. C

    Mom's peaceful passing

    I haven't been on here much in the past couple of years, but I thought I would share that my mother finally passed away at our home in June, exactly 3 years and 8 months after she went on a ventilator. We decided to take her off the vent when she started showing preliminary signs of sepsis, most...
  3. Lobster

    Patient letter in NY Times re "possible cause of ALS"

    An excellent letter: September 5, 2011 Another A.L.S. ‘Holy Grail’ (1 Letter) To the Editor: Re “Possible Culprit Is Found for Lou Gehrig’s Disease” (In Theory, Aug. 30): This excellent article on a devastating disease has some troubling observations. Not the least of these is a researcher’s...
  4. Lobster

    New model of ALS is based on human cells from autopsied tissue

    From the NIH website: By isolating cells from patients' spinal tissue within a few days after death, researchers funded by the National Institutes of Health have developed a new model of the paralyzing disease amyotrophic lateral sclerosis (ALS). They found that during the disease, cells called...
  5. Ms. Pie

    Do you know anything about this alleged ALS treatment?

    Hey, I got an e-mail from a PALS who is a friend of a friend yesterday. Sounds like a nice guy, but he started talking about a Dr. in Fort Collins that looks at and analyzes your hair and puts you on a vitamin regime and this makes the PALS feel better and can stop the progress of ALS. I know...
  6. Barbie

    Can I have some Cheese with my Whine?

    Hi All, I have been a member of this forum for several years and rarely post because...i don't even know why...but I do read and take so much good away from other posts. I feel like I know people who post alot, just from reading the forums and it makes me sad to see so many of the ones who...
  7. LizT

    An old friend plans on stepping up for us

    Hi Friends- just had to share this... I recently got in contact with an old school friend of mine. The last time we were chatting, I was telling him about my PALS. It turns out that an old boxing friend of his has it too... I was telling him how difficult it is trying to have a "normal"...
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