treatments

Merry Christmas and Happy Holidays to all. Ted and I know 2012 will be the year we reach a tipping point...from ...there is no cure,... to many trials already showing Treatments that work...join us by signing our petition and volunteering to help, or recruiting someone to help. Our Mission...

Hi all, I am new to the ALS group, recently my dad was diagnosed with ALS in October 2011 but may be it started a year back when he used to feel dizzy all the time. The doctors diagnosed it as problem with ear fluid, since he had difficulty in hearing on right side. Infact the dizziness stopped...

Hello- anyone who has any advice would be greatly appreciated, and I appreciate your time in advance! I'm currently getting worked up for my symptoms and I have a few dr's concerned that I may have ALS. I go to the ALS clinic in January for a consult, in the meantime I've been seeing a few...

Hi Friends, This is my first post in this forum. There seems to be a fairly regular upkeep here which is really a positive thing. I was diagnosed in 2005 with MMN with conduction block at Mayo Clinic in Rochester and have been on IVIG treatments ever since. Right now I go every other week...

Hello, I have been reading awhile, and have finally registered so that I can begin to take part in discussions. My husband has not yet been diagnosed 'officially.' He has pretty text book symptoms of progressive bulbar palsy. He started having a dry cough last March and Gen. Dr. told him it...

Together we stand tall. Mail text below to Knopp, biogen (every office worlwide), family and friends evererybody send those mails, because most off pals cant wait 3 years till it's for sale. Compassionate Use Drug Availability for ALS Patients Time to wade into the water on a controversial...

a letter about a third party coming to your home to evaluate you? By that I mean, not any physician you use, but one that has been hired through a company that the Medicare Advantage plan has contracted with. I checked into the company that will be sending the physician and they are strictly a...

I have been following this thread on ALSTDI. Oral Sodium Chlorite - ALS Research & Treatments - ALS Forum They have attempted to duplicate the effects of NP001 in which TCDO (Sodium Chlorite) is the active ingredient in both WF10 and NP001. Pals are have mixed a solution and administering...

A great note written by Richard Garr the CEO of Neuralstem. His company is the one funding the stem cell study at Emory where I am patient #11. I think he summarizes everything very well. He himself is very inspirational, he started this company because his son, who is thankfully still alive...

I origninally wrote this as a response to a note on my messages wall but it was too long to be posted there. So I thought I might as well post here since maybe others are wondering where I have been too. I have been better thats for sure. I have been dealing with tons of spastic spasms. I am...