treatment

desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...

I know there are many of you on this forum who are quite knowledgeable about the current research on ALS. Is this something you have already discussed? How promising is it, and has any of you enrolled in the trials...

my wife has been going to docs something is wrong and we dont know what she just turned 46. my 21 year old son who lives nearby has been diagnosed with testicular cancer, wednesday we go to find out about treatment options. i didnt know he was ill as he was hiding it from me and just told me. i...

Is it the longer one is improving in affected limbs the less likely pls/als? Can plateaus last years?* I had a thread for my dad but it's closed now.* He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging...

Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...

Asking for any information on PEMF treatment. Thanks.

Hello, After two years and a half of symptoms, my father has been diagnosed with PLS. We are still quite astonished and it is hard to stomach the truth. Given that the EMG was clean, the doctor thought that this was the most likely cause for my dad's symptoms. We are starting treatment next...

I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...

Hi ! I will try to make myself the most clear and brief as possible (you can see my other post for more information). In brief: October 2016: tongue bitting and what lookd like fasciculation (still ther today) December MRI...nothing February 2017: Emg with a specialist in ALS. No sign ALS...

https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html The above thread is my original thread, which has since been closed. Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw...