treatment

  1. lgelb

    Biogen picks up Ionis SOD1 treatment option

    This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...
  2. D

    Sensorimotor polyneuropathy and ALS

    In addition to ALS I was told that I also have Sensorimotor Polyneuropathy, but that I need no treatment for it. Anyone have information on this combo? Evidently the first neurologist I saw in Lafayette, IN, who did a less extensive EMG than the muscular neurologist at Rush in Chicago, added...
  3. C

    EMG on untwitching muscles

    Hello, I went to a neurologist who suggested I had ALS based on my signs and symptoms. (Constant muscle fasciculations, positive Babinski sign, left side weakness and atrophy -atrophy in left hand and right around and now both calves- slurred speech and cramps where my muscles get stuck. Also...
  4. H

    I'm Worried About My Symptoms

    Hi all! Thank for the creation of this thread. I've been lurking for a while, but have a few concerns now... A few years back I would notice fasciculations on my calves when getting home from work. I thought little of them at the time. Fast forward 2016. I was bit by a tick a contracted lyme...
  5. W

    Why Does ALSForums.com Support This Treatment?

    Find it odd this keeps popping up on this forum. Does this website and forum support this treatment? Has it been proven to cure or stop ALS?
  6. Scotiaspirit

    Radicava Side effects

    I been on Edaravone (Radicava) since March of this year. I been experiencing brief periods of blurred vision (both eyes at the same time) during my weeks on treatment, but do not seem to have them during my rest periods. My nurses and doc has noted it, but are unsure if it is a related side...
  7. Raja

    ALS+FTD on EDARAVONE for 6months.

    Hi friends, I am 62, from God's own country. Diagnosed with MND-ALS+(FTD??) in March first week, this year. There is no new stories. As usual, my neurologist put me on reluzole, edaravone, methylcobalamin, alpha lipoic acid,pyridoxine hydrochloride,D3, and some other supliments . Ok. I will post...
  8. J

    Cryopreservation

    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  9. worrieddaughter77

    Have you heard about this research and info on trials?

    I know there are many of you on this forum who are quite knowledgeable about the current research on ALS. Is this something you have already discussed? How promising is it, and has any of you enrolled in the trials...
  10. tripete

    how much more...

    my wife has been going to docs something is wrong and we dont know what she just turned 46. my 21 year old son who lives nearby has been diagnosed with testicular cancer, wednesday we go to find out about treatment options. i didnt know he was ill as he was hiding it from me and just told me. i...
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