transfers

  1. T

    I feel the end coming....

    As his speech is almost completely gone, and eating is done practically although he wants to try still,but isn't supposed to. His legs want to buckle in every time I try the gait belt for transfers. I don't know what to expect next. Will he last all summer? Christmas? Next week? How will we...
  2. Nuts

    New use for transfer board

    I almost took the transfer board out of the van the last time I cleaned it, as we have moved on to transfers only with the lift. I'm glad I didn't, because today I found a new use. One of our few local restaurants has all gravel parking, but in the handicap area there is a concrete pad over...
  3. M

    second torpedo

    It is probably my fault. Like the rest of you know if you get behind it can be a struggle to catch up. We are struggling with bathing, and getting me up if I fall. It is a lot harder than it should be but we are still getting by. I can still make transfers and walk short distances, but when...
  4. M

    My PALs Fell Friday - Scared and Searching for Next Steps

    Our PALs has been living with ALS for almost 8 years --- he is now to the point where is upper body, neck and breathing are the most affected. His legs still supported him but he had to move slowly. While caring for him on Friday, he got up to go to the bathroom. I walked him in, helped drop...
  5. Nuts

    Handling dead weight---crap!

    We've given up on standing transfers and as of this weekend are now either sliding or using the lift. Tonight it struck me just how bloody difficult it will be once he's truely dead weight. OMG! Just rolling him over to get the sling off was a struggle (he weighs over 200lbs). At his last PCP...
  6. L

    Bladder Problems

    Brief re-inroduction, my dear friend was diagnosed with ALS in June of 2012. She is now full time in her PWC except for toilet transfers and sleeping. She is able to transfer by herself for the time being. Neither she or her CALS husband are “forum” people, but they are aware that I have been...
  7. S

    Torso weakness

    My legs are weak but still function. A little foot drop. My arms are weak but work OK. My left hand is worthless but the right grasps pretty well. My problem is my torso. If I stand against a wall and take a step my torso goes unsupported and falls over limp so I'm staring at the ground. It's my...
  8. S

    HELP!Taking the next step to stay in bed

    I was hoping you guys could give me some advice. This is the hardest decision we have dealt with so far as far as him admitting that the time is now. I understand him not wanting to be restricted to the bed and have not wanted him to be, but we have reached a time that it is not safe for him or...
  9. Grumpy'sWife

    Tired and Scared

    Grumpy has been in the hospital for the last 6 days. Transferred us from the VA at homes to here in Cleveland. They seem very knowledgeable about ALS and have 3 other ALS patients here now as well. I haven't gotten much sleep as he isn't sleeping well and prefers me to the aides doing his care...
  10. Grumpy'sWife

    Rough Few Days

    Unfortunately Grumpy had a fall on Wednesday night. Thankfully nothing broken or strained according to the doctor. He has some pain in his right calf but nothing he will take meds for. Honestly I am afraid. He seems to be losing all the strength in his right leg. He has so much atrophy on the...
Top