transfers

  1. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
  2. N

    Milford patient hoist

    My special PAL is now unable to stand and pivot for transferring, he is always either in the hospital bed or PWC, we are exclusively using a manual Hoyer lift with a split sling for transfers. We don't have a van to take him anywhere, we are totally at the mercy of the local non-emergancy...
  3. S

    PALS wants to go to Mt Rushmore

    My PALS would like to visit Mount Rushmore. I am thinking that we need to wait until at least June to go for warmer temps?! I am worried about whether he will be walking by then?! If he is wheelchair bound, it brings up a lot of unknowns for me... I guess the biggest thing is will be still...
  4. K

    handicap bathrooms

    I am in a pwc all day and rest my arms on the armrests. My toilet at home has the raised seat and railings on the side. I am fine with this. My core and arms are getting weaker. The last time I used a public bathroom (at the clinic ) was awful. I was so floppy, couldn't reach the grab...
  5. D

    Myths about hospice care

    Myth No. 1: Hospice care is only intermittent. The truth: There are multiple instances of PALS who have needed and received 8, 16, or even 20 hours per day of in-home nursing shift care. Unless a patient’s insurance plan clearly and specifically limits it, there is no limit to the amount of...
  6. S

    toileting slings

    I just wrote a long post about toileting slings and lost it. Briefly, I need to purchase a sling to use when helping my PALS with toileting and daily transfers. He can no longer help me when moving from chair to chair, chair to bed, or chair to toilet. I purchased two slings and both hurt him...
  7. A

    Ranting Thanks or Thankfully Ranting

    M has progressed significantly in the last year. He has given up walking and currently is using his Zinger (our traveling electric wheelchair) in the house. We have an appointment at Spaulding for him to be fitted for a power chair. I have appreciated the recent threads regarding the PWC...
  8. Nuts

    One handed CALS

    I had the carpal tunnel release surgery yesterday at the Durham VA hospital. What a great experience--we are so fortunate to have THIS VA hospital in our area. My right hand is wrapped with only the finger tips exposed until Sunday. Our aide is working longer hours and my brother in law is...
  9. Nuts

    Newspaper Feature this Weekend

    While we were in Colorado, Matt was interviewed by a writer for the Grand Junction Sentinal. He was greatly entertained by the stories from the hunting trip as well as Matt and Darryl's friendship (some of which maybe shouldn't see print), and we learned this week that the feature will be...
  10. S

    traveling

    Hi, this is my first posting but I've visited the forums often and found them to be a source of comfort - just knowing there are others who are going through similar trials and challenges. Thank you for being out there. My husband was diagnosed a year and a half ago. Since February, he has been...
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