I feel for my mother in law.
She is still in good shape ... even if she has already lost some ...
On one hand they tell her ...
-don't worry for your blood pressure anymore
-don't worry for your cholesterol anymore
-Enjoy life right now
On another hand they say ...
-Do less, it is better for...
Hi everyone
Up until few weeks ago, my breathing was ok, but now i think my abdominal muscles are so week that i can only breath when I am laying flat. I have also noticed to my big despair that I am very short of breath when I start talking and even worse when i start laughing...
Now, what...
feb2010 first symptom dragging left foot
sep2010 diagnosed
aug2011 can only move hands and feet a tiny bit and turn my head left
22aug go for a feeding tube op doc tells me i should be having a tracheotomy! But i can't face it
28Aug...been salivating for 4 hours and still going
I'm just a...
My father turned 65 on November 3rd and was diagnosed 4 days later with ALS. I don't know if the entire concept has hit us yet but I feel that we are somwhat living in a bubble.
Like if we ignore it and don't talk about it it will go away. My father gets very emotional if we try to discuss it...
ability
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breathing
brother
bulbar
canada
dad
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go away
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love
lyme
lyme disease
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support
surgery
swallowing
symptoms
tests
tracheotomy
voice
I have issues with my Bipap, and cough assist. When I try to force air into my lungs faster than I can draw it in on my own. My throat slams shut like a bank vault door! There is no way my equipment can force air through. I have tried everything. Right now I have a sinus infection, and it sure...
Hello,
I am making a short film about a young man suffering from ALS/MDS. The protagonist of my film, has a tracheotomy, and communicates via a computer. I know ALS in younger people is rare, so I may have to change it to another MDS disease. I greatly appreciate your help in enlightening me on...
Michelle posted this link on facebook!
There was a woman with ALS, Pam Callahan, who attended a matinee last week. She is 48. She came on a rolling type of stretcher with four friends who were attending her. She is on a respirator which allows her to breathe. This is called “being trached,”...
Hi everyone,
So my dad has been in hospital for 2 months now. He went in with a GI bleed, then he got pneumonia so he was endotracheally tubed, then we opted to go for a tracheotomy and ventilator as my father still has much use of his legs and head although he has little use of his arms, upper...
I am hoping some of you experts can help me figure out what to do for my Dad.
Here is his quick story.
My Dad started going to the YMCA in 2007. He would work out 6-7 days a week for 1-2 hours. He was in great condition.
In January 2009 Dad suddenly had his shoulders and neck curving...
advice
back
blog
breathing
breathing problems
chair
confused
dad
decline
diagnosed
diaphragm
drugs
family
heart
hours
ice
immediately
joelc
night
oxygen
physical therapy
problems
speech
speech therapy
story
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tracheotomy
ventilator
wanted
work
wrong
Hello to all… this is my first post, so please bear with me. By luck I was able to come across this wonderful site yesterday. I spent time yesterday reading helpful posts to my father-in-law, who has ALS & found all very helpful. Many touched my heart & as I read some of the posts made me cry...
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feeding tube
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tracheotomy
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