Hi Everyone,
I've been a member for a few years now. I feel a little Embarrassed that I've never posted anything until now. I have gotten a wealth of information from everyone.
Here's a quick rundown about me.
I'm 58, Married to my high school sweetheart for 36 years. I was diagnosed August...
Hi all,
I've posted a few of my concerns about my Dad, and I thank you all for reading and responding.
This new issue is quite awful. My dad was diagnosed with ALS in August 2014. He seemed to have "a light case" at that time, but has since developed quite a bit of difficulty breathing. He...
als
back
bipap
breathing
chair
dad
diagnosed
driving
feeding
feeding tube
hospice
modifications
morphine
pain
ramp
reading
tracheotomy
van
wheelchair
wheelchair van
wheelchairs
Hi,
This is my first new thread. My dad, aged 78, has ALS. He was diagnosed last summer. He and my mom live far from me- and my siblings, but we maintain regular communication. Specifically- they are 1200 miles away- in the Florida Keys. Fortunately, I own a home in the same community- but, for...
als
bipap
communication
cough assist
dad
death
decline
diagnosed
diaphragm
feeding
feeding tube
hope
hospice
money
morphine
night
symptoms
symptoms of als
tracheotomy
work
My husband was diagnosed with bulbar ALS 2 years ago. He has a PEG tube and has lost ability to walk in his own, use his hands and arms and speak clearly. Breathing has been ok. He uses his non invasive ventilator at night. The past week he has been complaining about the settings I. His vent. He...
Hi,
My relative just had a tracheotomy. Right after the operation, he complains about stomach discomfort such as feeling full, farting a lot, and pain under the last rib cage and navel area.
He is worried that there is some wrong with the operation.
Does any one have any insight on this...
My name is Ellen. I've had ALS symptoms since 2005. It began with weakness in my right hand and slowly spread throughout my body. I was diagnosed in May 2007 - at that time I was mother to 5-month-old twin daughters and a 3-year-old girl. My husband had to take parental leave because I...
als
als symptoms
bed
clinic
communication
communication device
diagnosed
dynavox
kids
life
new here
pneumonia
symptoms
tracheotomy
vent
weakness
wes
wheelchair
young
I found the following article in a German forum and translated it , however, maybe not perfect!
Diseases of the central and peripheral nervous systems such as amyotrophic lateral sclerosis (ALS ) may lead to a strong flow of saliva , which often leads to swallowing and bring saliva into the...
als
botox
brain
dysphagia
improvement
lead
life
muscles
nih
paralysis
pneumonia
professor
respiratory
saliva
swallowing
therapy
tongue
tracheotomy
treatment
Hello everyone, I am new to this forum.
Is there anyone on this forum who has experience with a loved one, or themselves, with respiratory onset ALS? It affects only 4% of the ALS affected population. I am looking for guidance and exchange of information.
About 6 months ago, we noticed my 72...
als
als?
confused
diagnosis
father
information
life
muscle
muscle weakness
no diagnosis
onset
peg
reading
respiratory
respiratory onset
shortness of breath
tracheotomy
weakness
My fiance's grandmother has had ALS/PBP for about a year and a half and we've got her a feeding tube almost a year ago. Her phlegm has gotten worse, even when switching from formula to blended foods, and her doctor suggested having a tracheotomy. Just wondering if anyone has had it and if it helps?
Hi everybody,
I'm french, and it's my first message here, but I have been lurking the forums for weeks, as they are very useful, providing a lot of good advices and testimonies. The few forums devoted to ALS in France are not so helpful, gathering only few people.
My dad (57) has been...