1. sdpscl

    Introduction & Advice on Tracheotomy

    Hi Everyone, I've been a member for a few years now. I feel a little Embarrassed that I've never posted anything until now. I have gotten a wealth of information from everyone. Here's a quick rundown about me. I'm 58, Married to my high school sweetheart for 36 years. I was diagnosed August...
  2. A

    No wheelchair with hospice

    Hi all, I've posted a few of my concerns about my Dad, and I thank you all for reading and responding. This new issue is quite awful. My dad was diagnosed with ALS in August 2014. He seemed to have "a light case" at that time, but has since developed quite a bit of difficulty breathing. He...
  3. A

    Morphine to ease air hunger?

    Hi, This is my first new thread. My dad, aged 78, has ALS. He was diagnosed last summer. He and my mom live far from me- and my siblings, but we maintain regular communication. Specifically- they are 1200 miles away- in the Florida Keys. Fortunately, I own a home in the same community- but, for...
  4. I

    Question about when to get Tracheotomy

    My husband was diagnosed with bulbar ALS 2 years ago. He has a PEG tube and has lost ability to walk in his own, use his hands and arms and speak clearly. Breathing has been ok. He uses his non invasive ventilator at night. The past week he has been complaining about the settings I. His vent. He...
  5. A

    tracheotomy and intestinal gas

    Hi, My relative just had a tracheotomy. Right after the operation, he complains about stomach discomfort such as feeling full, farting a lot, and pain under the last rib cage and navel area. He is worried that there is some wrong with the operation. Does any one have any insight on this...
  6. Z

    Hello - New here

    My name is Ellen. I've had ALS symptoms since 2005. It began with weakness in my right hand and slowly spread throughout my body. I was diagnosed in May 2007 - at that time I was mother to 5-month-old twin daughters and a 3-year-old girl. My husband had to take parental leave because I...
  7. A

    Radiation therapy normalizes life-threading saliva

    I found the following article in a German forum and translated it , however, maybe not perfect! Diseases of the central and peripheral nervous systems such as amyotrophic lateral sclerosis (ALS ) may lead to a strong flow of saliva , which often leads to swallowing and bring saliva into the...
  8. J

    respiratory onset ALS

    Hello everyone, I am new to this forum. Is there anyone on this forum who has experience with a loved one, or themselves, with respiratory onset ALS? It affects only 4% of the ALS affected population. I am looking for guidance and exchange of information. About 6 months ago, we noticed my 72...
  9. C

    Anyone had tracheotomy?

    My fiance's grandmother has had ALS/PBP for about a year and a half and we've got her a feeding tube almost a year ago. Her phlegm has gotten worse, even when switching from formula to blended foods, and her doctor suggested having a tracheotomy. Just wondering if anyone has had it and if it helps?
  10. C

    Choleric and erratic behaviour

    Hi everybody, I'm french, and it's my first message here, but I have been lurking the forums for weeks, as they are very useful, providing a lot of good advices and testimonies. The few forums devoted to ALS in France are not so helpful, gathering only few people. My dad (57) has been...