tracheostomy

  1. K

    Scared of choking now, when I eat...

    Hi all, Since choking on food is happening more, and I don't think it's time yet to get a J-PEG, I am curious about the "cough assist" machines I have seen mentioned in some posts here. My disease hit my phrenic nerve, thus have a weak diaphragm. And coughing is very weak. Two weeks ago, I...
  2. K

    To joel

    Hi Joel, and to others in a similar situation, As I had mentioned a few days ago, I have advanced CIDP, which is a sister disease of ALS. It has affected my autonomic system, including hitting the phrenic nerve with hypoxemia. And advanced CIDP, is similar to facing what you guys are faced...
  3. joelc

    Interview we did

    . We were interviewed in January and the article just came out in the Vancouver Sun and the Province newspapers Feb 17th. It was done by the ALSA in BC as part of an ALS awareness campaign. Here is the content: “I try to be a positive voice” Joel Cutler always thrived on juggling multiple...
  4. K

    Vents/ Tracheostomy Breathing issues

    Hello, My uncle was diagnoised in India with ALS in April 2008. Last week, he was admitted to hospital and is on ventilator, according to people with him he is so weak that bi-pap is not helping. My questions is: Should we ask for tracheostomy so that he can go home and be on vent...
  5. M

    Tracheostomy and ventilator

    I had fluoroscopy this week showing at least half my diaphragm is paralyzed. I will be having a tracheotomy Friday and use a ventilator at night. My pulmonary specialist feels this will help my daytime functioning. Have any of you had any experience in this area? I would be interested in hearing...
  6. Al

    IGF-1 Clinical Trial

    Disappointing Results from IGF-1 Clinical Trial By Richard Robinson, Science Writer Subcutaneous (under the skin) delivery of insulin-like growth factor 1 (IGF-1) does not benefit people with ALS at a dose of 0.5 milligrams per kilogram of body weight, according to a large clinical trial whose...
  7. joelc

    Your thoughts on Tracheostomies, Vents & PEGS

    I have been reading the struggles so many people are having and it breaks my heart! As one who has endorsed technology and has a PEG and a Tracheostomy & Vent, I see the needless suffering people do. These devices are life savers and life enhancers and very easy to have done and deal with. I...
  8. hopealive

    Tracheostomy without ventillation

    HI Gang, Would anyone be willing to weigh in on a tracheostomy solely for the purpose of being able to suction secretion and phlegm, this is a huge issue for my mom and makes life very difficult. Anyone out there done this procedure for this purpose? Blessings to you all. Love, Holly
  9. M

    Recent patent; treatment

    Has anyone seen or tried this...? Sorry for the extensive length. Hope I didn't break any rules by copying/pasting it on here. http://www.wipo.int/pctdb/en/wo.jsp?WO=2008021970 Thanks. Mike TREATMENT OF MOTOR NEURON DISEASE, INCLUDING CERTAIN NEUROLOGICAL DISORDERS, MOTOR NEUROPATHIES...
  10. C

    Need help with trach care at home

    Hi Everyone, I am coming to the source of knowledge for help in caring for my husbands trach. He finally decided to do the trach with his Pulmonetic LTV 950 Ventilator. However, we need some do's and don't from those that have experienced the tracheostomy. I feel privledged to know about...
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