tracheostomy

Following the example of Joel and some of the other ALS families here, we have planned that I would get a tracheostomy and go on a ventilator eventually, in the hope of extending my life. We know a local PALS who's been on a vent for 11 years, so that has been an inspiration. But it's always...

Anyone out there who is on a ventilator continuously? If so, may I know what kind of tracheostomy tube are you using? Is speech permitted?

Ok...I think I'm starting to panic. A few weeks back, I posted a thread about my sister's breathing issues and a few of you replied back with some tests that should be done. Thank you for that. The tests have been completed, and what they found, I don't even think is an ALS symptom, or so the...

Hello: I'm new to this site. My husband was diagnosis with ALS on September 2009, after his, left foot dropped. I have been checking into a Diaphragm Pacer for breathing versus a Tracheostomy which is more invasive then the latter. Even through FDA hasen't approved this procedure yet for ALS...

Quality of Life Who’s the Judge? By Sam Filer (The National Access Awareness Week (NAAW) Kick-Off on May 29 saw the Metro Toronto Convention Centre teeming with activity. One of the most memorable events that day was a speech given by Justice Sam Filer, presented with the assistance of his...

Hello Everyone! The past few weeks I have found comfort into coming to this board and just reading...knowing that my family is not alone on this journey through ALS. My mom was diagnosed with ALS five years ago. She is 53 years old, pretty much confined to a wheelchair - with a lot of support...

Hello, I haven't written much, though I do come in here and read from time to time. My mum's back in the hospital again after about 1 year free of them. She has got an infection. Her fever's finally down after 4 days, though she is still on antibiotics. Nurses are incapable of taking care of...

Hi, A member of my extended family has ALS with Bulbar and a recent PEG feed tube. We meet with Hospice this coming Monday. My beloved friend asked me to go on an ALS forum to ask for advice in what may have been helpful for thinning out mucus. His mobility is rapidly failing and, pretty soon he...

Hi All, Firstly, I will introduce myself briefly as I feel that is appropriate around here. Basically, I'm 20, my dad is in his late 50's, got ALS 3.5yrs ago and in the past few days has been admitted to the hospital, first for a GI bleed after his GJ tube fell out and was replaced by a PEG...

It is my mom who diagnosed MND, that's how I got to this forum, I am new here. I dont normally read these forums, but I guessed her situation deterioted badly these couple of weeks and, amongst other things, she lost the ability to serve the web, hence, here I am. I feel very sorry to hear that...