tracheostomy

  1. E

    Alarm systems

    Hello, I am new to this forum, but I joined because we (his wife and I) want to get my patient an alarm system to be able to wake us up at night. We are having trouble finding one that is a good fit. He can use his right hand very little and can push his feet. He cannot talk as he has a...
  2. E

    Father Diagnosed with ALS

    My father has been experiencing declining upper body strength for the last 1-2 years. Last Friday my mother came home after running some errands to find him not breathing and with no pulse. The EMS workers were able to revive and transport him to a local hospital. He was put on a ventilator...
  3. halfin

    Update on HalFin

    . . I have been not too active on the forum lately. It has become hard for me to type more than a sentence or two. I mostly find myself offering condolences when people have passed, which is always sad. But at one time I was pretty active here so I thought I'd post an update. Also I'm trying...
  4. T

    Is it time for a tracheostomy ?

    Hi once again. You have all been very helpful to date. My 75 year old father is almost 3 years into his diagnosis. He has the bulbar form of ALS. He has continually surprised his doctors with his general strength. All his vital signs are very good, his limbs are all fully functional. He...
  5. notgivnup

    The NeuRx Diaphragm Pacing System,

    NeuRx Diaphragm Pacing System Approved for ALS I just saw this from MDA, The NeuRx Diaphragm Pacing System, a device that may forestall the need for invasive ventilation, has been approved by the FDA for ALS Article Highlights: •The NeuRx Diaphragm Pacing System, developed by Synapse...
  6. W

    Trach no Vent

    I am really confused. My husband who is bulbar, has been having spells where he can't take in a breath for a few seconds. His pulmonologist says he needs a trach because his throat muscles are floppying in. He say he won't need a vent. He can't talk or eat, but pretty much does everything else...
  7. J

    Tracheostomy tube holder

    Hello My dad has ALS, and he has it since 2009 (diagnosed) and really had to get the tracheostomy almost from the same time. The issue now is that the whole in his neck, specifically the skin has gotten bigger and the the tracheostomy leaving space for the tracheostomy to move and let air out...
  8. Alyoop

    Rilozole

    Recently on another thread, a discussion on the effect of rilozole was started. I have done a troll of a few medical journals and web sites, and found that the average of 90 days increased survival came up a few times. Probably from the same initial study. The FDA site sttaes information from 2...
  9. HalsWifeFran

    Doing trach too early?

    I have so much to say! It's been hard to find time to go online these past two weeks! Hal is in bed now, alarm outside his door, let's see what I can do! Caregivers perspective here: Today, I feel really bad that I encouraged Hal to get the tracheostomy NOW. Hal and I both have always...
  10. P

    the benefits of a tracheostomy without a ventilator?

    We were talking about my father-in-law's wishes regarding his treatment. My mother-in-law (who is a nurse and his primary care giver), said that my FIL does not want a trach/ventilator. She lumped them together like you could not have one without the other. Is it possible to have a trach...
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