tracheostomy

  1. N

    Trach - What is it like?

    Hello I'm trying to get a general idea from those who have gone through the tracheostomy process. What was your recovery time like and pain? How does it feel when breathing afterwards? Is it something you have to get used to? Is it better than what you were experiencing as far as breathing on...
  2. H

    Questions about a tracheostomy

    I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...
  3. L

    My Dad Died April 9th

    It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...
  4. O

    Respiratory Failure on Trilogy

    My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...
  5. L

    Doctors opinions on tracheostomy?

    My husband gets seen by the VA but they sent us to UT Southwestern to the pulmonologist to get a sleep study and orders for a cough assist and Trilogy. They are also the ones who are going to do the PEG tube. We had our first appointment there a couple of days ago. Towards the end of our...
  6. K

    I hope I'm not letting him down

    In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...
  7. Inventor

    Can't get the cuff tight

    Three months since tracheostomy and I have a constant problem with the cuff letting air past so that my throat is gurgling and the respirator beeping high mvi. The only way to make it tight is overinflation to the order of 50 mbar which is harmful to the tissue inside the trachea. I had the...
  8. P

    Questions about tracheostomy

    I at the point where FVC is about 20%, and I'm have a lot of trouble breathing. I have had my trilogy adjust 4 or 5 times. I have also had 4 overnight o2 saturation test done. In all the tests my 02 saturation has been between in the low to mid 80,s and that's with oxygen. I also have periods...
  9. D

    Attention federal employees

    Nowadays it isn't easy to find health plans with no caps on home health coverage, but if you're covered under a federal employee HMO plan, you should check the plan documents to see if it is a "federally qualified" HMO. No limits on the frequency or duration of visits are permitted on home...
  10. N

    Questions about tracheostomy

    Hi all, My tobii only has " tracheostomy" in its auto complete and since I feel very lazy today that is going to be the catch all for anything related to the operation. So I am looking at getting a tracheostomy and want to try to schedule the optimal time to get it, something early enough to...
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